Savella-- Anyone taking it? Need some support

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Judy in CA
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Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 10:32 AM (GMT -6)   
Hi
3 time trying to take Savella for depression and fibro
I just can't seem to get the dose up past 25 or even into a few days of 25's
headache, high B/P weight gain etc

Hope someone can give me some encouragement to hang in there with this drug
Judy

getting by
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   Posted 9/8/2011 11:43 AM (GMT -6)   
Hi Judy,

It probably is going to take six to eight weeks for Savella to reach it's full potential. I don't know how long you have been on it, so I don't know if you are beyond that point, It could very well be that it isn't the right med for you. There are many others that you can try. I find norco works good for my fibro pain. I take pristiq, abilify and xanax for depression. I don't know if any of them help with fibro pain though.

I hope that you find what works for you, like I say, there are many. I hope that you are feeling better. Keep posting and tell us a little more aobut the situation. For example, how long you have been on the savella.

Thanks for posting.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
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Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 12:18 PM (GMT -6)   
Karen
Thanks for the fast reply!
Feeling I'm just floundering here and not use to this forum either

I've been trying for the past 7 months to find something for depression. That's when I stopped smoking. I've been on Savella 4 times and can't up the dosage up past 25.

I got up to 25's 3 times and the side effects threw me off
Tried clelexa, zoloft 25 mgs for 15 years for fibro pain but couldn't get up to 50 b/ f IBS
Years ago tired all the SSRI's.

Just gave a new drug Viibryd a try and got did so well on low dose and then hit the higher and had severe 'd' ad cramping.
I felt great the first week depression wise. I lost 40#'s before stopped smoking and then gained it back plus 20 after i stopped and some meds added to the weight + stopping smoking
I did take 2 sample packs of the 12 and went up slowly
Maybe i just don't give it enough time
I am doing PT pool therapy for fibro and balance/vertigo and even started seeing a therapist but i just can't stand the way i feel

Guess you are still on savella as you said maybe i needed more time on it
Can you write back and let me know
Thanks again for the fast reply
Judy

getting by
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   Posted 9/8/2011 12:58 PM (GMT -6)   
Hi Judy,

I don't take savella. I just know that it take six to eight weeks for these types of meds to reach their full potential.

But if you have tried three times, you might want to try something different all together. Or maybe just keep it at a low dose. It is hard sometimes you feel like a guinie pig. Especially with fibromyalgia. There is so little it seems that helps us. Have you ever tried pain meds? Or are you trying to stay away from them? Some people don't want to go that route.

I find that walking helps me a lot. So I try to do that. I use to do so much and cross country ski in the winter. I can't so that anymore. But I try to get myself to every winter. Maybe one day I can. I wont get rid of my skis. We have long winters where I live so they are hard. I am glad I can come here to the forum. It helps get me through.

I hope that you have a good and painfree day.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 2:04 PM (GMT -6)   
Thanks Karen
Think My internist is kinda tired of me as he's tried so much
I'm thinking to just stay on the low dose and try to get more samples as they don't make the low doses i guess at pharmacy.

Was a Guinea pig for the viibryd for sure. Just came out and he usually does't do new meds with no research history

Right, i was going to switch but he seems to think this is the one so will try again
anyone else i'd tell them the same thing you told me. Seems stupid.

We left the cold and rain of PA but this CA temp where we are in S CA is brutal
115 today and humidity too
it just kills me.

I'm ususally a very positive poster but don't know where that went??? idea turn

I've always stayed away from pain meds as ex strength Excedrin would do it but took 20 a day and ate my stomach and gave me a ulcer. course Dr's weren't happy i was taking that much

the Tramadol put me to sleep on the 50's. Broke down and took one yesterday and had to lay down all afternoon
, couldn't sleep, and fixed dinner and then was asleep on the sofa after the savella.

I so appreciate your taking the time to comment
is there a way to search the savella to find links to people who used it on this site. if there is I sure did't see it FOUND IT smilewinkgrin

getting by
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Date Joined Sep 2007
Total Posts : 42434
   Posted 9/8/2011 3:48 PM (GMT -6)   
At the top of the page in small letters, there is a google custom search. I typed in savella and it brought up a few things, so try that out. You will find other posts on savella. I hope that it helps you.

Tramadol didn't do a thing for me. It didn't make me sleepy or anything. It was like taking nothing at all. Have you tried the malic acid/magnesium supplement that is on fibro101 thread on the fibro forum? It takes a few weeks, but I noticed my muscles feeling better from the magnesium right away. The problem for me with supplements is that I don't always take them consistantly. If I run out, I forget to buy more. Then I forget about it completely. But I did notice I felt better with the malic/magnesium. I use vitamin D3 too. It gives me a little energy and gives me an all around good feeling. I am not out in the sun a lot because I can't tolerate the heat or humidity. And I must say I don't envy you in the least having to live in that kind of heat. And humidity. That bothers me more than the heat. I have winter to look forward to as I live in MI. The cold is hard on me. But I have lived here all my life. So I try to endure. I love the changing of the seasons. But it does seem to rain a lot when they change and that is hard on me.

I hope that you find the information that you are looking for. Keep trying with the lower dose and see if it kicks in for you..... I hope that you feel better soon.

Hugs, Karen.

PS I just realized that you found it. Duh... But I still wanted to post, so I kept the info in there...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 5:18 PM (GMT -6)   
getting by said...


Tramadol didn't do a thing for me.

t was like taking nothing at all. Have you tried the malic acid/magnesium supplement that is on fibro101 thread on the fibro forum? I use vitamin D3 too. It gives me a little energy and gives me an all around good feeling. I am not out in the sun a lot because I can't tolerate the heat or humidity. And I must say I don't envy you in the least having to live in that kind of heat. And humidity. That bothers me more than the heat. I have winter to look forward to as I live in MI. The cold is hard on me. But I have lived here all my life. So I try to endure. I love the changing of the seasons. But it does seem to rain a lot when they change and that is hard on me.
.



OK FINALLY found the quote and got it to work
wanted to put my comments in red ???????? on your post.
Guess you can't

1. Tramadol knocked me out for hrs
2. malic acid/magnesium supplement (used to take that but caused nasty "D")
3. I use vitamin D3 too --now take Caltrate D660 and D 2,000 mgs
4 This heat is killing me and agree the humidity is worse
5. I really miss the change of seasons too

appreciate you taking the time to write me
Judy

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42434
   Posted 9/8/2011 5:31 PM (GMT -6)   
I enjoy writing. The d that you got was probably from the magnesium. Did you start out really slow. I did and that helped that not to happen. But maybe you are sensitive to the magnesium or something and it effects you that way.

I take calcium with 800 iu of D plus 2000iu D3. So I hope that is enough. I just did a month of 50,000iu because I was so low in it. I have to admit I do feel a lot better when I remember to take it. I put it in my pill box with my other meds now. I can usually find deals of two for one at Walmart. Plus it is very inexpensive to begin with. I am glad...

I feel for you being in the heat. We can use the air conditioning, but that sometimes makes me hurt more. But the heat exhausts me so which is worse? I can handle pain better than I can handle the fatigue. I have always been that way since I have had fibro. Mine started in about 2002. It kind of snuck up on me, but when it did, it hit with full force. It took me a long time to get a diagnosis. But once I did, I was seeking information on it. I use to get the fibromyalgia network newsletter. It is a rerally good magazine, but you only get four issues a year and it is around 25.00 or more probably now. But it does have a lot of information in it. Things that I barely understand, but you probably would. I found a lot of it easy to read, but there is a lot of technical stuff and studies that I don't understand. But it was nice to be on top of things with the newsletter.

Well, I hope that you have a good evening. It is a pleasure to chat with you. I hope that you stick around.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 7:40 PM (GMT -6)   
kAREN
woops the caps......still guess I'm not used to this
I'm used to the 'quotes' being in a box
sorry for the poor note here but too tired to re do it
Just saw it and there is a box but i wrote in it oye

getting by said...
no I didn't start out slow
Never could take M tho or in any supplements
Will look up the kind of D I take.

yes went years un-dx'd. Even now , new rheumy does't really believe in it but going along with me. Guess Internist does as PT added for me Pool and Massage/joint mobility

."""" I use to get the fibromyalgia network newsletter. It is a rerally good magazine, but you only get four issues a year and it is around 25.00 or more probably now. But it does have a lot of information in it.""" (HOW DO I GET THIS TO BE RED? TRIED MANY WAYS ..........MAYBE i CAN'T

I got it years ago and it was good and even got my Medical Library where i worked to subscribe to it.

AGREE WITH YOU ON THE CHAT.
SAW A CHAT BUTTON IS THERE A WAY TO DO A REAL CHAT????
Well, I hope that you have a good evening. It is a pleasure to chat with you. I hope that you stick around.

Hugs, Karen[/quote

Post Edited (Judy in CA) : 9/8/2011 7:43:26 PM (GMT-6)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42434
   Posted 9/8/2011 8:30 PM (GMT -6)   
You click on that button and it takes you there and lets you know who is in what room. Then if you want to chat, you sign in your user name and pass word and you can chat. You can pm on there too. Most people chat in the evenings.

I hope that you try it.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/8/2011 11:38 PM (GMT -6)   
wow thanks Karen
there is a PM also
will check out the chat
thanks again
Judy

getting by
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Date Joined Sep 2007
Total Posts : 42434
   Posted 9/9/2011 8:02 AM (GMT -6)   
You are very welcome. Have a great day today! Hoping it is painfree, or as close as you can get to it.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 9/9/2011 8:34 AM (GMT -6)   
Maybe your doctor and try you on something else such as Cymbalta...
don't give up on trying other medicines, you will find the right one...
The heat and humidity are very high here in Houston, TX, we broke records for
the most and hottest year ever here, this year, not good when your also in a drought
conditions...we need rain here. maybe we both should move to Hawaii...
anyways keep hope that there is a medicine out there for you, maybe even plaqernil,
many well wishes to you.
keep us posted.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42434
   Posted 9/9/2011 9:19 AM (GMT -6)   
I want to go to Hawaii too!!!
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/9/2011 10:30 AM (GMT -6)   
getting by said...
I want to go to Hawaii too!!!


Thanks all you nice folks
They have offered lyerica? and cymbalta but was afraid of those
don't know why
Just tired of being a meds machine.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42434
   Posted 9/9/2011 2:34 PM (GMT -6)   
I know what you mean. Between depression and fibro I take about ten different things, that includes blood pressure meds and cholesterol. But not counting my supplements. I feel like I get a meal when I take my morning meds. That is when I take the most. But it keeps me moving and that is what is important. I have been on the same things for a long time. And I think it keeps my pain levels down to a minimum. I still have pain, but I can tolerate it. I would say on a pain scale I am about a three or four.

Cymbalta is a hard medication to to discontinue once you start it. I think that gives it a pretty bad rap, but I took effexor and went off of it once and that wasn't any fun either.

Hope that you are having a good day.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/12/2011 10:10 PM (GMT -6)   
Karen
thanks for the nice note
we went out of town for the first time in almost a year
alot of standing and i'm in so much pain today hubby wants to get me a walker
2 day long car ride and one day in a transport chair at the Getty in LA

today i have a 10 pain.
Never had that 10 except for child birth

i came off the savella and now just broke down and took a tramadol.
not helping much
i just hate this immobilizating pain
usually can fight through it
today saw chiro and that didn't even help

need to find something for fibro and depression for sure

getting by
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   Posted 9/13/2011 5:43 AM (GMT -6)   
I have never had these types of drugs help my pain that I know of. I seem to need pain pills. I take norco and that seems to help me. It is a 10mg vicodin. Have you ever tried it? I don't know why doctors don't want to give pain meds to fibro patients. It is beyond me. But until I got the norco, I was in constant pain. I still have pain but it is manageable. It might be something you want to look into, it is a weaker narcotic. But it helps.

I hope that you feel better soon.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/13/2011 9:41 AM (GMT -6)   
thanks Karen
They wanted to through the big guns at me but i'm the one who didn't want them till last nite
how do you drive and clean on these drugs?
Judy

getting by
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Date Joined Sep 2007
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   Posted 9/13/2011 11:39 AM (GMT -6)   
I find the norco gives me a little energy. It has tylenol in it too. It doesn't cloud my head up. No pain killers do. I have more problems with the anti depressants messing me up. And neurontin, I couldn't function on that. I have osteo arthritis too and I take celebrex for that but not often. It effects my stomache if I take it a lot. I have heard of tramadol making people woosy. It iddn't effect that way with me, in fact it did nothing. I went the whole route with this until they tried vicodin. It helped me but not enough. I am achey today because the temps dropped a lot. Went from 85 to 50 or less. Give or take a few degrees. I feel my shoulders stiffening up on me. That is where most of my pain is. And in my left arm. High up by the shoulder. Also my neck gets tight. I use to take soma for muscle relaxer but my new doc took me off of it. So I just try to do meditation to relax my muscles. It does help. They think of soma as a buzz drug. I can see why. But I didn't like the feeling. And found out if you take it with food it didn't act that way. It is a good muscle relaxer for me though. Better than flexeril. Flexeril makes me sleepy. I wont take it because it gives me a hangover type feeling. I can't get going in the mornings. I am slow today. Still haven't gotten dressed. Got to do that and walk the dog. Then peel some applea for apple sauce.

I think that you will find, if you ever do it, that drugs like morphine is what messes you up. They make you want to sleep. The only really bad thing with narcotics is that they can cause depression. So the anti depressants may have to be raised. I think though it depends on what you take and how much. But norco is very low on the pain med scale, some doctors don't even think of it as a narcotic. Remember norco is just strong vicodin. But some people are more sensitive to it than others. So it may effect them differently. I had one doctor refer to it as "like a narcotic drug". It is hard to find a doctor who will prescribe anything other than tramadol and flexeril for fibromyalgia. I got lucky. But I don't think my doc would prescribe anything stronger than that for me. But I can live with a little pain. I also take adderall for fatigue. It really helps. I was in bed for close to two years before I got something for fatigue. I can handle pain much more than that feeling of exhaustion. I just can't take feeling all weak and tired. The adderall can make the pain worse though. It seems that no matter what you take there is a side effect to it. That is what makes it so hard. I tried many antidepressants but the side effects would prevent me from taking them. Finally effexor worked for me. Now I take pristiq. It works well. I take abilify too. It is a mood stabilizer for me. And it makes the pristiq work better. So that is a win win situation.

I hope that you do find what works for you with your pain and depression. Keep posting. I enjoy reading what you write. I think with fibro and depression, it is a visciouis cycle. ONe effects the other. So you really have to stay on top of everything...

Best wishes for a pain free day.

Oh do you take vitamin D3? You may not need it but most fibromites do. I find it helps me feel better and gives me a little energy too. It might help you. Do you get your levels checked? I do periodically.

Take care,

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/13/2011 2:01 PM (GMT -6)   
thanks for the wonderful informative note
Know it takes so much time to write all this out.
I agree with all you said.
I'm just so tired of doctoring
esp
since we moved to new state and finding new drs
my old internist i'd been going too for 25 years and he knew me so well
will print your note for references.
thanks for the time Karen
your the best mod ever
Judy

getting by
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Date Joined Sep 2007
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   Posted 9/13/2011 2:29 PM (GMT -6)   
I hate changing doctors or losing one. My last doctor retired, I am seeing a new one now. Well I have been seeing him for a year, but only once every three months. So we still don't really know eachother that well. He seems to be very nice though.

One thing for a medical doctor. Make sure that they believe in and treat fibromyalgia patients. My psychiatrist is "mind and body" so he treats my fibromyalgia as well which helps. He prescribes the adderall for me. But my family doctor treats my pain.

Are you noticing anything from the Savella? I know it takes awhile to reach it's full potential, but often we start feeling better before hand. Let us know how that is going.

Thank you for the compliment. Some days are better than others. I do like to type, so it is fun. I don't know a lot about technical things with fibro. I use to get a magazine and was up on all the new stuff. But now I just know what I went through and I try to share that. There are many who are against meds for fibro. But I just say to each their own. I do know that walking helps me. Moving around and gentle stretching (which I don't do nearly enough). I try to drink a lot of water to keep my muscles hydrated. It seems to help in a lot of ways.

Take care Judy, keep posting.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Bigquestion
Regular Member


Date Joined Sep 2011
Total Posts : 32
   Posted 9/13/2011 2:59 PM (GMT -6)   
Judy, Your first post said you were taking Savella for depression and Fibro. Please read up on this drug n this page http://www.savella.com/. It specifically says it is NOT for depression, just fibro. But side effects may include suicidal thoughts. I know nothing about the illness or the drug, just what I read just now.
 
Regarding Tramal, I have been taking it for some years now for pain and it takes the edge off. I only take 50mgs per day, Slow Release and it mostly takes the pain away from my thoughts. If it gets worse I have fast release tabs to take and they do the trick. Unlike you I find no sleep effect at all from it but unlike Karen I do get relief. Then again though our pains are different types. Mine's knees and back. So it obviously works differently for each of us.

Judy in CA
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 9/13/2011 5:35 PM (GMT -6)   
hi big
well shows you what both my Drs. know...internist and rheumy
why can't we just got to the dr and get FIXED
i'm really getting so very tired of this.
thanks for the info
somethings I've read said it was a anti-d
we're just Guinea pigs anyway

Bigquestion
Regular Member


Date Joined Sep 2011
Total Posts : 32
   Posted 9/13/2011 7:59 PM (GMT -6)   
Judy, You went to that page I gather, the manufacturer's site. What probably causes people to say it is an anti depressant is stated at the top of that page. It uses the same process as an anti depressant. If one reads just that it would be easy to assume it is therefore an anti depressant. But if the manufacturer goes to pains to state it should not be used for depression then I'll believe them. There's a lot of myths and half truths in the drug world, prescription that is so it's critical you have a good doctor who knows what they are doing. In my view depression of a long term nature must be treated by a specialist every time. I'm using the local doctor myself so far but I haven't been diagnosed with depression as yet. But it sure feels bad anyway. If it extends apparently it can be diagnosed as depression and if it is then I will go see a specialist, a psychiatrist.
 
If you treat a long term illness of any kind with the local doctor really what you are doing is accepting treatment from an orderly instead of a doctor. Yes they are trained fully but they can't know it all and that is why we need specialists. The other thing too is we get so little time with the local doctor they have to guess quickly. I see their role as the frontline but needing to refer us on when they are out of their depth. That's how the medical system is set up actually, like Triage in a war. Send serious cases to the best surgeons and lesser problems may be treated by the local.
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