Vagus nerve, ketamine and trans cranial stimulation

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bayoub2
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   Posted 9/18/2011 4:34 PM (GMT -6)   
Hi-
 
 I'm desperate, 6 years of paralyzing depression, 15 anti-ds, 18ECTs, 3 hospitalizations.
 
Does anyone have any knowledge or experience with these therapies? Ketamine look great but don't know if it is only experimental or covered by medicare.
 
Any info is greatly appreciatedd-thanks y'all
 
Maggie

theHTreturns...
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Date Joined Mar 2009
Total Posts : 20193
   Posted 9/18/2011 9:00 PM (GMT -6)   
i hear that TCS is effective. it is mainly used in private hospitals though here. i too have had ECT, found it highly effective. not sure about ketamine though, another member is having treatment. (faithfully4u) check out the thread. with healing compassion, jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20193
   Posted 9/19/2011 2:19 AM (GMT -6)   
i had ECT in 2004. It was for a serious resistant depression. it saved my life. as for ketamine, i know what it is, and on the streets, but some hospitals and peak bodies are engaging in clinical trials of it. furthermore i found ECT and its effects sedate compared to some of the medicines i have been on. as for the trials on ketamine........we have to wait and see. jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 9/19/2011 8:06 AM (GMT -6)   
Ect was a total waste of time for me, I lost large chunks of memory, and boy, does it tick my hubby (like it's my fault) 1000s of hours of cbt have taught me most of their techniques are for the very mild depressed (garden variety, situational). I am glad ect worked for some

My life has been so hard for 6 years that , yes, Iw ill be a guinea pig. What could possibly be worse than the hell I live now, curled up in a room, with door closed, all friends and fsamily sent away, no phone, don't leave house....wouldn't you try it? Ketamine, if you study it, has had very promising results. Unfortunately, street drug users have blown it for us, just like pain meds.

Please faithfully4u, please keep posting, and I pray every night for continued improvement-Lord. please help your lamb

Maggie

getting by
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Date Joined Sep 2007
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   Posted 9/19/2011 10:17 AM (GMT -6)   
Chansull,

I am sorry that you don't believe in the things that help some of us such as doctors, meds and other treatments. Sounds like you are stuck. I wish that there were something that could help you.

I have had much success with medications, but not until I tried many. It took years to find out what worked for me. So far, so good.

I do know that you have to be proactive in finding what is going to help you. For some it is just mind over matter.

We don't know the extent of Jamies depression before he went for the ect. I do know it made him better. But yes, he is still struggling. And he is on his own journey with that. We all have our own ways of coping though some of us have yet to find them.

I hope that you find what works for you, in the meantime, please respect what works for others and wish them well. We are all here for support. Nomatter what the issue is.

Take care,

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

bayoub2
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Date Joined Sep 2006
Total Posts : 2861
   Posted 9/19/2011 1:52 PM (GMT -6)   
Chansull I have gone to the dark places and confronted all the horror of my childhood. I am blessed by God and have been able to forgive and move on...I can honestly say that I hate no person, I just see them as very unhappy.

We cannot make progress without moving forward, taking some scary chances, and sacrificing. Medical advancements are not made with us sitting on our butts, contemplating our navels. So, altho I do despise Pharma and big business for their greed, good things do happen. So, hell yeah, I'll roll my sleeve up for horse sedative if it gives a 28% chance of relief in 2 hours!!! Sign me up.

All mof us have to take our own very personal journey. What works for one may be anathema to another. You have to do what you think is BEST for YOU.
Love
Maggie

bayoub2
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Date Joined Sep 2006
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   Posted 9/19/2011 4:13 PM (GMT -6)   
I agree Chansull....I put on that facade for a long time-didn't want to be a bother, didn't want anyone to know how bad it was, something shameful. Unless we are totally honest with ourselves and those trying to help us, what's the point??? It is alright to keep a hopeful outlook on getting better, but, likemyou said, if we are all so good, what are we doing here-LOL?

And we should always try to be supportive of others' efforts, even if we think they're a little kooky (aren't we all?) I support every single person here, however they choose to try to get better, short of hurting yourself or others. And this is a great place to get all this anger and frustration and the good stuff out. We might just help someone else.

God watch over you all

Maggie

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/19/2011 5:04 PM (GMT -6)   
Hey Maggie
 
I just wanted to post a note here as I know I am qualified to share my thoughts on depression.  I have 29 year hx of major depressive disorder, anxiety and PTSD.  6 years ago I had a meltdown and for the past 6 years I have been working very hard  with my psychiatrist, my therapist, medical Doctor, my family and friends and the awesome members of HW.  I have been on many meds, and have been told recently that I appear to be medication resistant. 
 
Ketamine has been the subject of studies but has not been approved for use to the best of my knowledge.  The problem with using ketamine more widely to treat depression has been the fact it has to be given intravenously under medical supervision, and it can also cause short-term psychotic symptoms.
 
Jamie has had some good success with ECT and the fact that it has worked for him and gave him some good time is a plus not the fact that he still suffers from his disorder 7 years later.
 
For 20 years I was able to put on the face that people wanted to see, the happy, confident me which was who I was most of the time but the tears of a clown were often shed behind closed doors with only my hubby to see.  Clinical depression is not a sign of personal weakness, or a condition that can be willed away. Clinically depressed people cannot "pull themselves together" and get better. In fact, clinical depression often interferes with a person's ability or wish to get help. Clinical depression is a serious illness that lasts for weeks, months and sometimes years.
 
Depression is something you overcome.   Sometimes you need medicine or therapy to help you overcome depression, but in the end, you must desire with all your heart to overcome it. There will be good days and bad days.  Enjoy the good days and accept the not so good days. 
 
Don't be afraid to ask for support, support is essential to life !
 
Kindly,
Kitt

~~Kitt~~
Moderator: GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

Post Edited (stkitt) : 9/19/2011 5:07:45 PM (GMT-6)


bayoub2
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   Posted 9/19/2011 5:58 PM (GMT -6)   
I totally agree. For a long time, I thought if I just tried hard enough, I'd overcome it. I'd fake it til I made it...and cried buckets when no one was looking. They said I was so strong and I felt like a fraud. Now I know, depression is not the flu, it is something that will always be with me....kind of like herpes, it's always lurking in there and sometimes acts up. We have to learn so many things to keep it under control and all of us have a different concoction.

I am a woman of great faith, joy and gratitutde and I know I can do this, but I just have not found the right path. But, as lost as I am, I'll never give up trying to find my way back. I have somuch to give to others, I won't stop trying.

ECT had no effect on me and I was heartbroken, but I'll keep trying...my meds are failing after 2 years so I'm off on a adventure down a new path....I'll keep you posting...I'll never give up!

Thanks for the support and hope all have a peaceful night

Maggie

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20193
   Posted 9/19/2011 8:00 PM (GMT -6)   
they will not give it to me!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ECT.

WE ARE DOWN THE MED ROAD AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! JAMIE
 
PS  also a change in dx.
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

Post Edited (jamiee) : 9/19/2011 8:07:50 PM (GMT-6)


theHTreturns...
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Date Joined Mar 2009
Total Posts : 20193
   Posted 9/20/2011 12:33 AM (GMT -6)   
chansull i did have success for around a year and a half. i suppose they are not giving to me because i am not at risk enough. here they use it for resistant depression per se, and yes for extreme cases with bi-polar- when we crash badly. at this point i am on newish medication which is being monitored, i am sure that my psychiatrist is monitoring me closely.he is actually. my bi-polar dx is newish as well. i had other dx's as well, but they have been given the flick due to therapy and dealing with the issues pertaining to them. i am in regular therapy, see a psychiatrist once a month and consult with my gp regularly too. i would have prefered maintenance ECT albeit that was squashed. so am on medication. hoping this helps, jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20193
   Posted 9/20/2011 4:31 AM (GMT -6)   
you are asking a lot of me. jamie. as stated i live with rapid cycling bi-polar disorder and emotionally unstable personality disorder. former schizo-affective disorder and borderline personality disorder. treatment with ECT was for MDD.

meds lithium, tegretol. abilify, seroquel.

lombroscal spine, genetic hormonal condition, insulin dependant diabetic, chronic pain. diabetic nueropathy in feet and retinapathy in eyes. (minimal) severe insomniac.

JAMIE
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 9/20/2011 7:22 AM (GMT -6)   
I'm sorry Jamiee that they think you're doing so well (you wouldn't be asking if you were doing that well, right?). Maybe you should go in and start rampaging around, jump on the sofa and beat your chest-LOL!! Not trying to make light of yr situation, but they are so DENSE sometimes.

Meds are so frustrating...they try one and we "have to give it time"-like 6 weeks and usually you aer still suffering badly. So then let's try another 6 wek trial. I've been jumping thru the med hoop for too long too.

Could you talk to another doctor who is a little more open to other options? I go see mine today and I am going in strong-we know what's going on alot better than they do.

I hope you find someone who really listens...Godspeed

Maggie

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20193
   Posted 9/20/2011 7:43 AM (GMT -6)   
i am very unwell, jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42439
   Posted 9/20/2011 8:21 AM (GMT -6)   
Chansull,
 
Here is my post to you and I didn't make any accusations.  I think my post to you was compassionate and kind.  I only asked that you respect what works for others.  And yes you are stuck.  many of us are.  If you don't want to go to a doctor, and be open, how in the world can they help you.  You make it sound like when they ask for your help, you don't want to give it.  That is your decision.  And we respect that.  But how can you not be stuck if you aren't getting anywhere?
 
Chansull,

I am sorry that you don't believe in the things that help some of us such as doctors, meds and other treatments. Sounds like you are stuck. I wish that there were something that could help you.

I have had much success with medications, but not until I tried many. It took years to find out what worked for me. So far, so good.

I do know that you have to be proactive in finding what is going to help you. For some it is just mind over matter.

We don't know the extent of Jamies depression before he went for the ect. I do know it made him better. But yes, he is still struggling. And he is on his own journey with that. We all have our own ways of coping though some of us have yet to find them.

I hope that you find what works for you, in the meantime, please respect what works for others and wish them well. We are all here for support. Nomatter what the issue is.

Take care,

Hugs, Karen
 
I do not know what happened to IG's post.  Maybe she deleted it.  I don't know.  I will give you fair warning though if you flame anybody on this forum, it will be editted, or if bad enough it will be deleted.  If you don't do that, you have nothing to worry about.  And yes I am busy.  I moderate two forums and am helping on two others.  So worrying about your accusations is not on the top of the priority list.


Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

bayoub2
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Date Joined Sep 2006
Total Posts : 2861
   Posted 9/20/2011 8:43 AM (GMT -6)   
I am so sorry you are doing so badly. My hubby deals with bipolar also (off meds rite now) and I'm MDD and PTSD. Our house is wacko-lol.

I hope you can find something to feel good about. I try to find 5 things I am grateful for every day. Sometimes that is almost impossible.

God be with you
Maggie

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 9/20/2011 9:11 AM (GMT -6)   

 
Regarding my post, I have a 29 year history of depression, anxiety and PTSD. Hx= History.  Here is a link to the official recognized types of depression: http://www.nimh.nih.gov/health/publications/depression/what-are-the-different-forms-of-depression.shtml
 
I did not say I was treatment resistant however I did say, "  have been told recently that I appear to be medication resistant. " 
 
Yes,  I live a normal and productive life and I live in the present not dwelling on what happened in the past but instead dealing with issues one day at a time.
People are as entitled to their opinions as you are. Allow them to express how they feel and let it be. Remember that it’s all relative and a matter of perspective.  Decisions about health and well-being are highly personal, individual choices.
 
With that said I wish you peace and I hope you find what you are looking for to help you with your many issues and questions.
 
HW is all about caring and support.
 
Kindly,
Kitt
 
~~Kitt~~
Moderator: GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

getting by
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Date Joined Sep 2007
Total Posts : 42439
   Posted 9/20/2011 7:35 PM (GMT -6)   
I am sorry that you feel distressed.  I was not trying to critisize you.
Maybe I should of rephrased it as you don't believe that the medical profession can help you. That is the way it sounds to me. Why you can't get a dx, I don't know.
But that is your situation, not mine.
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Post Edited (getting by) : 9/20/2011 8:00:05 PM (GMT-6)


bayoub2
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Date Joined Sep 2006
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   Posted 9/21/2011 7:28 AM (GMT -6)   
Chansull

Basically, none of us has a "diagnosis" or we wouldn't be here. Whatever the medical community has advised to do has, for me, failed miserably. Others have a good degree of success

Our main mission here is to listen, to commiserate, tell each other what works for us, to have a laugh, to have some relationships(Cause I no longer have a single friend outside my family)

I'm not sure how this got to be passively hostile, but let's just start over please?

Hi, my name is Maggie and I'm a big darn mess-lol? Who are you, where do you come from and what do you like to do?

Maggie

getting by
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   Posted 9/21/2011 7:30 AM (GMT -6)   
My psychiatrist has said that my depression has gone into remission with medications, though I will have to take them the rest of my life. I think that is about as good as it gets. For me anyway.
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 9/21/2011 9:31 AM (GMT -6)   
I am a person with depression,  I also have PTSD, and GAD. How was I diagnosed - Several  physicians made this diagnosis based on the  symptoms. My medical history, including whether there have been previous episodes of depression was evaluated. Family medical history, particularly of mood disorders, is important information. Blood tests are not routine at present but are being considered for future use in evaluations. It is important to rule out any other medical condition as the reason for the depression since some medical problems have depression as a symptom.
 
Are there different types of Major Depression - Yes ! 

Major Depression, single episode (occurs only once), and Major Depression, recurrent (a pattern of depressive episodes which occur more than once). Dysthymia also occurs. In this condition the person has chronic low grade depression which lasts at least two years and in which the person has more days with depression than with normal mood.

So if you have one single episode then I guess you could say you were cured which is a wonderful thing.

Generally it is thought that Major Depression resulting from imbalanced brain chemicals is not cured, but, rather is controlled. I fall into this category so I take medications and I am in therapy as it helps me.

One thing you may want to try is CBT and I would recommend this for all who struggle with depression and/or anxiety.  Cognitive-behavioral therapy is based on the idea that our thoughts cause our feelings and behaviors, not external things, like people, situations, and events.  The benefit of this fact is that we can change the way we think to feel / act better even if the situation does not change.

There is a free online version that you can work right from the privacy of your home and I will post the link here.  We have many members who swear by CBT.  To take a look at it .

http://moodgym.anu.edu.au/welcome

 

 


~~Kitt~~
Moderator: GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

getting by
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Date Joined Sep 2007
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   Posted 9/21/2011 3:11 PM (GMT -6)   
there was another post asking how you are doing at this time, which is gone now. I was answering that post. I don't see anything argumentive about what I said.  The response wasn't even meant for you. 
 
 
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Post Edited (getting by) : 9/21/2011 5:08:15 PM (GMT-6)


getting by
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Date Joined Sep 2007
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   Posted 9/21/2011 6:49 PM (GMT -6)   
I never said that meds cure depression. They help me.
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

getting by
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Date Joined Sep 2007
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   Posted 9/21/2011 9:21 PM (GMT -6)   
a. The act of remitting.
b. A condition or period in which something is remitted.
2. A lessening of intensity or degree; abatement.
3.
a. Medicine Abatement or subsiding of the symptoms of a disease.
b. The period during which the symptoms of a disease abate or subside.
4.
a. Release, as from a debt, penalty, or obligation.
b. Forgiveness; pardon.
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Screaming Eagle
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Date Joined Sep 2009
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   Posted 9/22/2011 12:09 AM (GMT -6)   
Chansull, you have caught the eye of several moderators, and appear very combative and disrespectful not only to other members but, moderators as well.
I have turned this matter over to the Admin.


SE
Moderator Chronic Pain Forum

Weekly Quote!

"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together"

Post Edited (Screaming Eagle) : 9/22/2011 12:22:56 AM (GMT-6)

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