Love your tag under your name.. ! haha.. Well, at least you haven't lost your sense of humor..
Couldn't help but think of myself, as I read your post. Yep. With the exception of just a couple of things, you are my mirror image.
"I have forgetfullness, severe headaches, serious amount of pain all day, tearfull, have been diagnosed with fibromayaglia 5 years ago.. very bad sleeping routine, i.e want to sleep in the mornings, but dont want to go to bed at night!!"
I have learned thru experience that some of this is its own, self-supporting, vicious circle.
I've learned that when my UC flares and the stress from that increases, my Fibro will be right behind it.
First... some of this can be caused by dehydration. It has symptoms that we would Never think of.. so, Be Sure you are drinking eight, eight ounce glasses each day.
Second, the sleep pattern being off and lack of sleep will add to all of this and renew the symtoms each day. Get to the Dr and get something like Elavil (Generic Amitryptaline) for sleep at night. It will take about two weeks to get the full affect but, it is SO worth it.
Also while there, tell him about your level of pain. Pain--constant and unbroken--is a catalyst to depression, fatigue and irritablility. Get some help for your pain. Physical Therapy is most important to those of us with Fibro.
Are you getting counseling? It is Very Important. If not, get an appointment with a therapist, aquainted with your type of situation. They will be someone to unload on and, give you feed back and tools as to how to deal with each day and your emotions.
And, do not forget that Care-Givers need More care than the patient. You need enough energy, hope, love, time etc., not just for yourself but, in double duty fashion for the patients also; therefore, be sure to put yourself first.
I know that sounds crazy but, (been there, done that) I learned thru experience that you can't help others if you're not up to it. So, in order to help everyone else, get yourself in Prime shape then, everything else will fall into place.
Ask a family member/close friend, to give you some help one day a week or whatever they can, so you can have a day to rest, focus on yourself, shop, read, go to lunch, a movie, whatever. It will improve your outlook to have time to yourself. And, it's not selfish, it's good sense. Call it maintainance.
Also, with the children who are able to understand, sit and talk with them and tell them what you feel about them and that you are going to try to change things; that you are getting help.
Jayney, when I took the First Aid course on CPR, they told us, "you can't help the victim if you're past the point of having energy. You only will endanger yourself then, become useless to the victim. Take care of yourself first or, when the Fire Department gets there, they will have TWO victims."
The point is, You First then, it will be So Much easier.
Let us know how you are doing and, remember, this will get better..
Don't forget.. Drink your water.. :)
Post Edited (RainDance) : 3/30/2005 10:17:45 AM (GMT-7)