Hanging on by a thread

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Aug 2011
Total Posts : 74
   Posted 2/28/2012 10:06 AM (GMT -6)   
Hello. I was not sure if I should write something, but I feel like I am losing my mind and having some really bad thought.

I have systemic lupus and fibromyalgia. about 6 months ago, my husband and I got the okay to have another child. 5 months ago, I found out that my 6 year old son has dominant optic atrophy(a rare genetic disorder) that could cause him to go blind and deaf. At the same time, I started having chronic sinusitis that finally ended in 2 surgeries to fix the problem. During that time we decided not to have another child. The doctors told us that my daughter might also have the genetic disorder and that there is nothing to do for the condition but to get checked every year for the rest of their lives for progression of the disease. about 2 months ago, I had some routine blood work done and my liver numbers came back high. Then, my blood pressure spiked and my pulse rate was extremely high, I was also passing out, so I was put on Bp medicine and told to see a cardiologist. (that is tomorrow) I also had to see a liver doctor, who did some more blood work and a liver biopsy...I get the results on Friday.

Needless to say it has been a lot to deal with. During all of this, my husbands company was laying off up to a 1000 people...we just found out Friday that he was one of the lucky ones. Thankful for that. I am just so scared for my kids that I might not be around much longer...they are so young (6 and 3). I just don't understand how I could be so healthy 6 months ago and now...so ill. I get tired of telling my husband that I don't feel well and that I just don't have the energy to do anything. I am sad.

If you are still reading this...thanks. Any insight or help in this matter is greatly appreciated. I needed to vent.


getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42612
   Posted 2/28/2012 3:18 PM (GMT -6)   
Hi LupusMomma,

Welcome to the depression forum. First of all, I am glad that your husband wasn't laid off of his job. They are so hard to find these days. So be thankful for that.

I think if they get your blood pressure under control, you will feel much better. Are you by any chance taking tylenol or anything that would cause your liver enzymes to spike? You probaby avoid those chemicals anyway. I hope that they find the culprit and that your liver will be okay. But in the meantime, try not to think the worse. It could be something that is easily fixed or will fix itself. So try to think positive. We all want you to be around to see your children grow up and beyond.

I am glad that you felt up to posting here. I too have fibromyalgia and my sister had lupus. I hope to never get that, but it seems cancer and autoimmune disorders run in my family. But lets hope for the best. I hope posting helped you to feel better. Please continue to.

Have a great day...

Hugs, Karen
Moderator-Depression and fibromyalgia

fibromyalgia, Chronic fatigue, depression, allergies
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 3:05 AM (GMT -6)
There are a total of 3,005,804 posts in 329,264 threads.
View Active Threads

Who's Online
This forum has 161804 registered members. Please welcome our newest member, FADE IN:.
241 Guest(s), 0 Registered Member(s) are currently online.  Details