Hello. I was not sure if I should write something, but I feel like I am losing my mind and having some really bad thought.
I have systemic lupus and fibromyalgia. about 6 months ago, my husband and I got the okay to have another child. 5 months ago, I found out that my 6 year old son has dominant optic atrophy(a rare genetic disorder) that could cause him to go blind and deaf. At the same time, I started having chronic sinusitis that finally ended in 2 surgeries to fix the problem. During that time we decided not to have another child. The doctors told us that my daughter might also have the genetic disorder and that there is nothing to do for the condition but to get checked every year for the rest of their lives for progression of the disease. about 2 months ago, I had some routine blood work done and my liver numbers came back high. Then, my blood pressure spiked and my pulse rate was extremely high, I was also passing out, so I was put on Bp medicine and told to see a cardiologist. (that is tomorrow) I also had to see a liver doctor, who did some more blood work and a liver biopsy...I get the results on Friday.
Needless to say it has been a lot to deal with. During all of this, my husbands company was laying off up to a 1000 people...we just found out Friday that he was one of the lucky ones. Thankful for that. I am just so scared for my kids that I might not be around much longer...they are so young (6 and 3). I just don't understand how I could be so healthy 6 months ago and now...so ill. I get tired of telling my husband that I don't feel well and that I just don't have the energy to do anything. I am sad.
If you are still reading this...thanks. Any insight or help in this matter is greatly appreciated. I needed to vent.