Depression after getting bad news from Dr

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New Member

Date Joined Mar 2012
Total Posts : 2
   Posted 3/12/2012 7:51 PM (GMT -6)   
Hi everyone!!

New member here and I have been looking for a forum like this....thank the good Lord I found it....

I am a 37 yr old Man who 11yrs ago got multiple blood clots in my right leg. At first it was so bad they were going to take the leg, but with much begging and promises to care for it I got to keep it. (mind you I was playing College basketball at the time). Then each year I would have a "re-clotting" of the leg multiple times over the next 5-6 yrs...and with that I had to "not stand too long"..."not sit too long" theory...I gained weight. with that came adult diabetes (pills only) and severe neuropathy... needless to say its been quite a hellish decade...

So the worst of it is the depression from all the pain and the OVERBEARING fear and nightmares of dying.....just this year they diagnosed me with Degenerative Distal Polyneuropathy with axonol dominance AND Post Tramatic Stress Disorder because the Neurologist came right out bluntly and told me "Well Mr Schley, if we do the math on how far up your legs the nerve degeneration is to the years it took I would be safe to say 10-12 yrs before your paraplegic and in need of a feeding tube" .....and that she was going to keep me comfortable as possible for as long as possible... mad

I have seen one "Therapist" and didnt like her...I dont need a cheerleader I need an ear and someone who has gone through this or even something similar. I have a Loving wife and a 4yr old Daughter....that just adds to the worry and stress of being there for my daughters big "Life Moments" .....

Please I need an ear.......


Elite Member

Date Joined Mar 2009
Total Posts : 20279
   Posted 3/12/2012 10:14 PM (GMT -6)   
welcome to the forum watcher.

we are here for you,

with healing compassion, jamie



getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42610
   Posted 3/13/2012 6:51 AM (GMT -6)   
Hi Watcher,

We can be your new ear. I suggest you get a new counselor though if this one isn't helping you. Maybe she is a little over zealous.

I am sorry for your situation. What about walking? Would that help? Can they disolve the clots? Walking would help your diabetes too. But I don't know what it would do for your leg. I hope you get better soon and don't have to fear dieing. It is an easy way to get out of problems, but some of us want to live longer.

Keep your chin up if you can. You have a good family and want to be around to watch your daughter grow up.

Keep posting, it really helps to get things off of your chest.

Hugs, Karen
Moderator-Depression and fibromyalgia

fibromyalgia, Chronic fatigue, depression, allergies

Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 3/13/2012 12:01 PM (GMT -6)   
Hi Watcher and I too want to say welcome aboard. I usually hang out on the chronic pain and psoriasis forum but happened by here and saw your post. I had to post to you because your situation is exactly like what my husband has been battling for over 15 yrs.

My husband's situation was missed by his drs and he is very lucky to here today because they did knee surgery on him as an emergency because a staph infection was eating up the cartilage in his knee. The surgeon was not listening to him tell what kind of pain he was having and where it was located. It was several days after surgery when the partner walked in to check on my husband, it was the drs day off. When he told this dr and showed him where the pain was at it got his attention and a doppler was done. They found a huge clot and of course everything was suddenly different treatment wise. He spent 45 days in the hospital and it was a complete nightmare.

Fast forward because of a huge weight gain he is no longer a candidate for the surgery where they implant the little basket to catch any clots that may come loose. His weight gain was caused by inactivity and food became his comfort zone. Now, two yrs later severely diabetic on shots 3 times a day. His sugar is not under control mostly because of him and his bad eating habits. He is constantly getting clots, in & out of the hospital every time I turn around. He is so unhealthy and unable to do much. A lot of his problems stem from him being hard headed and not listening to the drs obviously.

I can only say to you do not give up, do not let yourself get in the shape my husband let himself get in. Find yourself another counselor, sometimes a psychologist can help. I had one that pulled me out of the hole I had dug myself into. Depression can be helped with medication and counseling.

I know it just about kills you to be up on your feet, get good support hose and wear them. I imagine your dr has told you to do this. I have to wear them because of leg swelling. The best exercise you can do that will not cause you a lot of extra pain is water therapy. You are weightless in water. Join a YMCA or even a gym that has a pool.

The people here at this forum are the best and they will always be here to support you and lend an ear. You have a lot of years left to live to see that little girl grow up. Concentrate on getting yourself healthy and everything else will fall into place.

I am serious about the water therapy, it will help you lose weight and not kill that leg at the same time. Please take care....Susie

New Member

Date Joined Mar 2012
Total Posts : 2
   Posted 3/13/2012 1:52 PM (GMT -6)   
Wow...Thank you for the replies everyone. And especially to you Straydog...Yes that is a mirror image of my story. I am CONSTANTLY battling Celluitious and I had gained a bunch of weight. And the Dr's told me that the "Vena-Cava" or what they call the "Greenfield Filter" would actually be bad since I clot so my case I am dealing with TWO different things...Venus Insufficiency and Degenerative Distal Polyneuropathy with Axonal the Pain is unbearable daily. If you dont mind me asking is your husband in pain because of the Clot damage?

And I would LOVe to talk more about this...should I be posting in Chronic Pain...because THAT is side by side with the depression I deal with..actually its THE reason why I am Depressed....Please Straydog I would LOVE to talk more.....

Thank all of you wonderful people on here ....I love all of you for even listening....


Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 3/13/2012 9:12 PM (GMT -6)   
Hi Ryan, by all means come visit us at the chronic pain forum, you will be more than welcome there too. I visit several of the forums here, lol. You are not limited to just one forum, lol.

Yes, my husband's pain is because of the clot damage, his lower part of the leg is almost black and now the other leg is starting to look the same. He also has the neuropathy in his feet and hands really bad and was recently put on Neurotin for this. Circulation is a real problem in both legs.

Omg, cellulitis with those legs, I am really sorry about this. I battle it too, lol. Come to find out mine is because of psoriasis that gets out of control. I have it at times severely on my feet and when this happens cellulitis sets in. I have been in & out of the hospital with it, not much fun. But, at least now we know what is causing it, because prior to the dx of psoriasis we had no clue.

Look forward to hearing from you.

By all mean I will be more than happy to visit with you any time. If you prefer to email me, all you have to do is click my name and go to where our profiles are and you can get my email address. Only members can see our email address. Be sure to put in the heading you are from Healing Well if you decide to email me, otherwise if I do not know the person emailing me, I delete the email, lol.

Take care.
Moderator, Chronic Pain Forum & Psoriasis Forum
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