Major Depressive Dementia

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LupusMomma
Regular Member


Date Joined Aug 2011
Total Posts : 74
   Posted 4/13/2012 2:57 PM (GMT -6)   
Hello. I usually check in on the Lupus Forum but today I was told that I have Major Depressive Dementia. I have never heard of this and find it ironic since I am not depressed...at least I don't feel that way (I have been suicidal in the past, about 6 years ago). Everything in life is going very well except for some health issues but that is expected when having a chronic illness. The doctor says that I need to go on Zoloft (or recommended that I should) but I am already on Savella for fibro that acts as an anti-depressant as well. So, my question is...has anyone even heard of this? I tried to look it up on-line but found that it is usually diagnosed in old people (I think 75+...not to offend anyone with the old remark :-) ) but I am only 33 years old. So, any insight or information you might have would be greatly appreciated. Have a great day!

LupusMomma

Illmissucat
Regular Member


Date Joined Mar 2012
Total Posts : 94
   Posted 4/13/2012 3:38 PM (GMT -6)   
No I have not. However about a year ago I was very very ill. I'd just switched to a Gluten free diet and was pretty much starving to death, I was on Zoloft and had been on it for so long that it was causing neurological side effects such as tremors, facial and limb numbness and twitching and I was just in general very malnourished and ill. The doctors at first thought I had some sort of autoimmune disease. While I was being tested for this I was also experiencing some depression and psychological problems. Being tested on and told your sick and being tossed around doctor to doctor made me feel even worse. I was put on an anti-psychotic which within days cause tremendous pain to my neck, spine and shoulders. I suddenly became unable to do just about anything. I could hardly walk. To counteract the pain I was put on a high does of Nuerotin. My mind started to go. The results came back from my earlier tests and no autoimmune diseases could be confirmed then a doctor told me what she suspected... vascular dementia. Fortunately, there was not much to be done about my vascular dementia without insurance so I was just going to get to die. OR... in my case, I decided to very carefully go off my medication and distance myself from those doctors. Turns out, physically I am pretty much fine. Allergic to Gluten. A hormone imbalance. And I'm a bit touched in the noodle. But most my problems were drug interactions that no one bothered to link to medication. Not saying it is the same in your case or anyone elses but just a cautionary tale. I was really concerned, obsessed, trying to find out what was wrong with me. It was incompetent doctors willing to exploit my fears.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/13/2012 5:14 PM (GMT -6)   
LupusMomma
 
I would kindly suggest you seek out a second opinion.  Also is the Dr. who dx the Major Depressive Dementia a psychiatrist ?  I understand your concerns re this latest news so do be your own best advocate.
 
Kindly,
Kitt
~~Kitt~~
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Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 4/13/2012 5:51 PM (GMT -6)   
I agree with Kitt. I think a 2nd opinion is warranted in your case.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

LupusMomma
Regular Member


Date Joined Aug 2011
Total Posts : 74
   Posted 4/13/2012 5:55 PM (GMT -6)   
stkitt-

I was diagnosed by a neuro-psychologist or neuro-psychiatrist at Indiana University Methodist Hospital. It was 3 and a half hours of testing different cognitive skills and a few questionnaires (one had 175 questions). I know that I have had what people like to call "brain fog" from the lupus and fibro but never as bad as it is now. I know that my husband is freaking out because he says that I am really forgetful and it is worrying him that something might be wrong. He said that he believes that it is dementia just not due to depression. Who knows? I am getting tired of doctors and them all trying to tell me that I am depressed and that it is all in my head. I am happy most of the time and I don't want for anything. My kids are great and I have a husband that is beyond helpful and wonderful to me. I have help from my mom so I don't feel overwhelmed...I think that if a doctor can't explain something, they just want to write it off to depression. Sorry for the rant...I needed to vent. Thanks for listening. :-)

LupusMomma

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 4/13/2012 7:05 PM (GMT -6)   
I had never heard of this before so I did a little quick reading. What I read, from 3 sources, is that dementia is often wrongly diagnosed when it is really depression, at least in the older population.

I wonder if maybe the doctor you seen kind of had this tendency to misdiagnose in his head when he examined you. I am not saying he is right or wrong, only that as the adage goes: When you look for something you will probably find it.

As "CAT" pointed out your problems with memory, brain "fog" etc could potentially be linked to whatever medications you are on.

I went through a period a few years ago where my short and mid term memory went on vacation. I knew I was having problems but the issue got so bad that I would forget I had a problem until I would try to remember something like if I fed the dog or where I put my keys (2 minutes after getting home),etc. Of course I could never remember to bring it up to my doctor. It wasn't until after I got kicked to the curb for missing too many doctor's appointments and go off my meds that I was able to put it all together and realized it was one of them that was to blame.

I had a hard time actually finding memory problems as one of the possible side effects of that medication but there were many listings for things like changes in mental status.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.
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