Chronic Epstein Barr Disease, Chronic Fatigue Syndrome, GERD, and more... OH MY!

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AlliMuses
New Member


Date Joined Jul 2012
Total Posts : 11
   Posted 7/16/2012 8:42 PM (GMT -6)   
I've had Chronic Epstein Barr Disease, Chronic Fatigue Syndrome, GERD/acid reflux, Leaky Gut Syndrome, and a bunch of food allergies for almost 2 years now (was just diagnosed a few months ago though) and I'm just at the end of my rope here. I'm tired. Physically, mentally, emotionally... I'm just so sick and tired of being sick and tired. I've got too many different symptoms to list here...but basically every symptom that you could ever link to any of the illnesses listed above. So anyway, I'm just looking for some support/ people to relate to. Anyone dealing with anything similar? Any ideas on how to cope? I wanna live my life. Just still learning how to do this with a chronic illness...
-Allison :)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42439
   Posted 7/17/2012 3:41 AM (GMT -6)   
Hi Allison,

You have come to a good place. And welcome... Coping with chronic illnesses is hard. But it can be done. The basic thing to do is take life one day at a time. I am sure as you know with the chonic fatigue, you never know how you are going to feel from one day to the next. Well, the best thing to do is take it as it comes.

Our administrator, Peter Waite, has a blogspot that talks about this. You might want to check that out. I believe at the top of the page in a blue square there is a place to click. Reading here helps too, and we have a wonderful chronic fatigue forum. Have you been checked out for fibromyalgia? I have that, and I get a lot of fatigue with that. I take adderall for the fatigue. It helps a lot. So there may be some meds out there that you haven't tried.

I hope that you feel better soon. It is possible to cope with chronic illnesses. Keep trying. I hope that your day is good...

Hugs, Karen...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20190
   Posted 7/17/2012 7:49 AM (GMT -6)   
hi allison,

jamie here,

i too have a myriad of stuff going on. diabetes, arthritis, slipped disc,
hormonal disorder, cholesterol, diabetic retinapathy-massive vision issues
along with my mental health concerns. for me it is about good people
around you. along with an excellent dr. and allied team. o also have my
dedicated hw team around me. one day at a time. and remember that
slow and steady wins the race. we are here for you.

with healing compassion
jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

AlliMuses
New Member


Date Joined Jul 2012
Total Posts : 11
   Posted 7/17/2012 12:11 PM (GMT -6)   
Thank you so much for your answers and advice, Jamie and Karen! It really is just nice to know there are other people out there who get it. That is definitely the hardest part for me- not really knowing anyone to talk to. But I'm working on that! This website has made finding people quite easy. :)

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20190
   Posted 7/17/2012 8:23 PM (GMT -6)   
:-) jamie
EMOTIONALLY UNSTABLE PERSONALITY DISORDER,

RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.
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