getting by said...
Thank you F$,
That really means a lot. I think everybody plays a part on a forum to keeping it going and keeping it safe. I am sure that there will be times when we might get a new member who doesn't have other people's best interest at heart. But that happens. For now all is well.
If you don't mind me asking, how long have you had fibromyalgia? Mine started in about 2002. It has been awhile. I guess we live and learn daily with a chronic illness. It isn't all bad, but without fibromyalgia, it would have been better, I think.
First memory of my first flare is when I was 18, I'm now 37. So for quite a while now, unfortunately I've been ping pong around doctors after doctor only treating the pain symptoms and not the whole condition, not until 2010 when I was in America, a doctor in Urgent care suggested I look into FMS. He gave me Savella titration pack, and it did do some help, didn't stop me from needing tramadol, but help with the brain part of things, just little changes like less brain fog, it was a start of a journey to look for better answer. Then I had to go to UK, and found a FMS specialist in London, he then confirm the DX. We're tried all sorts of medication, including Cymbalta, Pagabentin (Lyrica), Norgesic, all with the aim to take off my reliance on tramadol. So far none of those drugs has worked. I'm now on Valdoxan for my depressant, which I think is probably the best so far, I've been given permission to take up to 800mg Tramadol per day sustained release, which helped. I've also been given permission to mix that with panadiene (tylenol + codeine) which help with the legs, currently trying out norspan patch so I can reduce my intake of panadiene. I'm also on Clonazapham (because we don't get flexiril outside of USA.) and I use Zolpidem (stilnox, ambient) at night. So far all these cocktail seems to make things more bearable, but had a major flare last night. Am all better now though (it's 7.30am over where I am). Stress is a major factor to my flares, which I think everyone can relate. Still dealing with fatigue, but that's not too bad nowadays, with some of my drugs which are designed to help me sleep better or set my circadian rhythm. So far this week, I think I had 1 morning that I sleep through 3 alarms, but usually, I can wake up by my second alarm.