Whistling in my head

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RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/7/2017 9:06 AM (GMT -7)   
I started Effexor about a month ago and felt some symptomatic relief almost immediately. I expected some side effects, but the most annoying is a constant whistling noise in my head. This isn't tinnitus, or ringing in the ears, though similar. It seems to be right in the middle of my head, and I'm wondering if anyone else experienced anything like this.

I see my doctor on Friday and would like to be prepared. The therapeutic effects right now outweigh this small annoyance, but I don't know if I would want to put up with this if it never goes away. On the other hand, I would rather live with this than go back to my old explosive temper and crying fits.

Thanks in advance.

getting by
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Date Joined Sep 2007
Total Posts : 41902
   Posted 6/7/2017 11:08 AM (GMT -7)   
I have a sound in my head that I hear when it is real quiet. Usually I don't notice it. I don't take Effexor anymore, but I don't think that caused it. I think most people hear a noise when it is real quiet. Is that what you are talking about. Mine is more of a ringing though. Maybe a whistle. I am not sure. But I have had this for many years.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/7/2017 12:35 PM (GMT -7)   
Thanks for your reply! This definitely started a few weeks after starting the Effexor. I did experience a minor but constant headache for a week or so after starting, but read here that some get that. Then the noise started. I am an audiophile and have a lot of money invested in my hearing, which my wife says is "too sensitive" (people who talk loudly hurt my ears).

The noise does not affect my hearing, that's how I know it's in my head, not my ears. I am hoping that it goes away after a few weeks. I am thinking of asking for an increase in dosage on Friday, thinking the noise may get better or worse... that would pretty much nail it.

To me, ringing is like "eeeee", and whistling is "sssss" or maybe "shsh".
2014-15: PSA 9,12,20,25 Neg DRE, Neg TRUS biopsy
6/2016: MRI Fusion biopsy, Rt Base, 2x100% G8 (4+4)
8/2016: DaVinci RP, PNI, 6mm EPE, 2xSVI, pT3b N0M0
1/2017: Lupron ADT, AMS800 AUS implanted 5/15/2017
IMRT SRT postponed til that heals, PSA's ~.03
Age 66, recently retired to Florida 'just in time'

BnotAfraid
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Date Joined Apr 2012
Total Posts : 7167
   Posted 6/7/2017 1:10 PM (GMT -7)   
I have lots of neurological issues, but I hear music most days, some louder that others, and it is not always what I like.

Once in a great while it is humming or whistling.

My belief is that one of my injuries jarred a memory area of my brain and it remains active.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/7/2017 5:15 PM (GMT -7)   
Must be nice to hear music... well, maybe not all the time smilewinkgrin

I've just done a Google search and found several references to tinnitus and "swooshing noises" related to Effexor, though typically from those trying to come OFF the drug. It is listed as a less common side effect of Effexor. As I do not lose sleep or have any other serious side effects, this leaves me with the question whether or not I want to remain on this med for its therapeutic properties, try to switch to something else, potentially less effective, or continue with it and hope that this annoyance eventually goes away.

getting by
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Date Joined Sep 2007
Total Posts : 41902
   Posted 6/8/2017 1:47 AM (GMT -7)   
Pristiq is a close cousin to Effexor. I take it. I have no brain zaps (swooshing) except if I miss a dose. You may want to try it. It has gone generic. I am on generic now and it is the same.

Best wishes.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/9/2017 2:44 PM (GMT -7)   
I saw my doctor today and discussed this. I told him that the Effexor is a "darn good 'head' drug" and does everything I had hoped it would. He told me to double my dose, that maybe that may knock out the noises. We discussed Pristiq and Cymbalta... there are potential downsides to each and might not do for me what Effexor does.

BTW Pristiq doesn't actually go generic until 2022. It costs 3-4X as much as Effexor... pricey, but not prohibitive. What you take may be under the generic name (desvenlefaxine) but it won't become less expensive until Pfizer surrenders their patent. Desvenlefaxine is the primary metabolite of venlefaxine but even the manufacturer advises against moving directly from one to the other without tapering down first. As they say, YMMV. I'll have to see how the 2X Effexor affects the ringing. If not then I must choose between losing the benefits or tolerating the noise.

BnotAfraid - I'd be interested to hear about some of those injuries you mentioned. If you get an email from a Yahoo name that looks sort of like my screen name, that's me. I spend a lot of time in chatrooms, mainly cancer, helping new victims and caregivers. At least I like to think that i help. Also orthopedic injury chatrooms, though not so much anymore.

Thanks for your replies!

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7167
   Posted 6/9/2017 7:21 PM (GMT -7)   
Rob, I checked out your cancer page. All I can say is, that you will never know the courage and strength you give to people.

You sir, are a courage Warrior. I try in a small way, had a group for child abuse survivers, it fell apart after year when a hard subject was mentioned. Hard to face monsters.

So I started a Face Book page under the name of the group. "Finding Courage". I turned it into a blog and try to post at least 2-3 times a week. Hope what I put out there keeps one person out of the darkest places we can go.

I will look for your email.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/11/2017 5:53 AM (GMT -7)   
Effexor doubled, okay so far. Noise still there but no worse.

Trina - I sent you an email. Hope you are well.
Emotional scars last a lifetime...
things we rarely remember, but never forget.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20035
   Posted 6/12/2017 3:58 AM (GMT -7)   
nice sharing guys. head shudders from weaning from desven. slowly getting better. effexor good, as it has a long shelf life and tolerable at higher doses for continued efficacy. keep strong roblee.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7167
   Posted 6/12/2017 10:37 AM (GMT -7)   
Hi HT. Hang strong mate.

Perhaps some of the shuddering is the issues of mum and her dementia. Heard to deal with no matter what level of relationship parent/child is or was.

Be kind to yourself HT and Rob, do not count on anyone else doing it for you.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7167
   Posted 6/12/2017 10:38 AM (GMT -7)   
Hi HT. Hang strong mate.

Perhaps some of the shuddering is the issues of mum and her dementia. Heard to deal with no matter what level of relationship parent/child is or was.

Be kind to yourself HT and Rob, do not count on anyone else doing it for you, we have to be the change.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/18/2017 12:21 PM (GMT -7)   
I'll bet by now, Karen and Trina are probably wondering, "why the heck did we ever let this guy in here... now he just won't shut up" eyes

So anyway, recently I mentioned my anti-D pulling back and Abilify or similar "mood stabilizer" was suggested. I have a little knowledge of antipsychotics in general and neuroleptics (Seroquel and Fluphen-azine in particular) thru some experience with family members. I'm not ready to go quite that far, at least not just yet.

Some background is probably in order.

Earlier this year I was put on ADT or androgen deprivation therapy, as part of the "trifecta" of cancer treatment... surgery, radiation and chemo. Generally speaking, ADT is the chemotherapy for advanced prostate cancer. It blocks hormone production, and is somewhat like menopause... for most women, menopause sees a gradual decline in hormones over a period of years.

ADT is like slamming on the brakes on the freeway. Suddenly there's an onslaught of side effects... persistent hot flashes, night sweats, mood swings, mental fog, weight gain, body hair loss, and gynomastia. I had asked my radiation oncologist for help with the SE's. He was no help. I asked my GP and, after a lot of research of my own, requested Effexor. Other men on ADT have reported using it for ADT SE's.

Initially it was helpful. It reduced the frequency, severity and duration of the worst SE's. Additionally I felt more emotionally stable, as I had also hoped it might do. A couple years ago, when I suspected there was something wrong, but all the tests were negative, I was experiencing volatile moods... lots of crying, explosive temper... that kind of thing. My wife kept telling me I was depressed, which didn't help at all. But after starting the Effexor I told my wife "all the memories are still there, they just don't bother me so much anymore".

So at this point I'm enjoying some of the "off label" benefits of Effexor. I still have a lot of headroom if and when I need to increase dose. The buzzing or "whistling" in my head is a small price to pay for the reduction of SE's from the Lupron injections, as well as a sense of being perhaps a more pleasant person to be around... certainly less volatile, with far fewer ups and downs.

Thank you... I appreciate the recommendations (and concerns!) and hope my comments here are okay.

...Rob

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41902
   Posted 6/18/2017 4:01 PM (GMT -7)   
A few days ago you said the Effexor was doubled. Are you still feeling good with the increase? Did you get any more side effects?

You sure have been through a lot RobLee. I hope that the Effexor increase works well for you.

Thanks for sharing. You could never post too much. Your comments are just fine.

Have a good evening RobLee.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

RobLee
Regular Member


Date Joined Apr 2017
Total Posts : 388
   Posted 6/18/2017 4:24 PM (GMT -7)   
Thanks... the increase was a little over a week ago. So far the noise is no worse and maybe even a little quieter. The therapeutic effects are starting to pull back, I think, but then I'm still on a pretty low dose. I remember there was a sense of exuberance when I first started, that it seemed to be working so well. After a while it leveled off. That's maybe all it is. As I said, I think I still have a lot of headroom for increases. Thanks for asking!

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20035
   Posted 6/18/2017 9:05 PM (GMT -7)   
golly gosh rob......you remind me of my early days here....good on ya buddy, never shut up!!!
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