Day 12 of Cymbalta Discontinuation

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F27
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Date Joined Feb 2016
Total Posts : 866
   Posted 11/2/2017 3:07 PM (GMT -7)   
Somehow, my brain became heavier than my skull.

That's the only way I can explain why, when I turn my head, I can hear my brain moving to catch up with its container. Depending on the time of day, and the mood of Cymbalta discontinuation gods, I can also hear my eyes move, and feel the most delightful zaps of electricity in my head. Oh yeah, it also sounds like I have insects in my ears.

Seriously, I'm down with the whole concept of side effects, but this is ridiculous. THERE SHOULD NOT BE BUGS IN MY EARS! DAMMM YOU ELI LILY! Also, there is 6 inches of snow on my driveway that I did not approve of. DAMMM YOU MOTHER NATURE!

The titration schedule recommended to me was 10% every 3 days. Today is the third day of a 40% reduction, which means tomorrow is my first day at 50%. Overall, it hasn't been as bad as the Internet said it would be, although the weird brain stuff is annoying. Thankfully, Mrs. F27 has been taking apart all of my 60mg capsules, and removing the appropriate amount of Cymbalta beads. Interesting trivia: did you know that each 60 mg Cymbalta capsule has about 580 tiny little beads? Evidently, they're enterically coated, so you can't just dissolve them in water to do your titration, you actually have to count the stooopid beads. Tomorrow, the long-suffering Mrs. F27 will be counting out 290 beads to remove from each of three capsules. I'm shocked that her eyes haven't fallen out of her head yet.

But at least she doesn't have to hear her eyes moving.

Anyone wanna shovel my sidewalk? I'll give you 20 bucks, and a lifetime's supply of surplus Cymbalta beads.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/2/2017 3:17 PM (GMT -7)   
Snow here too but some of it melted. But we got about three inches of the white stuff.

Sorry about the withdrawal symptoms. When I took Effexor I would get brain zaps and yes, I could hear my eyes move. The pharmacy just switched my generic pristiq. Luckily it seems okay. I been on it about six days. I hate when things get switched and it is out of our control.

I am glad Mrs. F27 is helping you by counting the beads. That has to be a pain in the you know what. That is so sweet of her to do that for you. Could you imagine having to do that every day?

You have a real good attitude for what you are going through. I hope that it continues to go well. Are you going off altogether or are you switching to something else? I can't remember.

Have a good evening. Best wishes...

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

kellyinCali
Regular Member


Date Joined Apr 2009
Total Posts : 292
   Posted 11/2/2017 7:17 PM (GMT -7)   
F27, I'm sorry that you are struggling with withdrawal symptoms but what a blessing that Mrs. F27 is willing to separate those beads. That task would drive me crazier than I already am! lol Also, good to see you have a sense of humor about it. It helps!

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19902
   Posted 11/2/2017 9:08 PM (GMT -7)   
it is a hard wean, i have done it. it gets better. keep strong.

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/3/2017 12:50 PM (GMT -7)   
Thanks @gettingby - I have to admit that it sucks being in my head right now, but I'm titrating slowly enough that I can still work and live my life. I'm switching over to Zoloft. The idea behind the switch is that it should be less disruptive to my sleep.

And you and @KelliInCali are sooooooo right. I have the best spouse in the world. smile

Thanks HT, I'm with you - it's quite unpleasant. Thankfully everything feels okay, as long as I don't move. So yeah, being a sloth is working out to my advantage!

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 6087
   Posted 11/3/2017 5:15 PM (GMT -7)   
Oh my goodness--the snow gods colluded with your doctor. I' d see my lawyer, if I were you.

Going off cymbalta didn't impact me--but it never worked for me. Interesting thought--do you have side effects matching how well the drug worked for you? Anyone want to run with this?

Going on wellbutrin was the worst side effects I ever had from an AD. The zaps, the noisy eyeballs, the on-edge feeling--yep, yep, yep.

Snow? Wow. Wowowow. Warm here--hit near 70 today--freakishly warm. So warm that the leaves are really just getting going.
Ulcerative Colitis 2003, Fibromyalgia DX 2005, Crohn's 2013, Enteropathic arthritis, 2013. Family History of Fibro--2 out of 3 siblings diagnosed. Started SCD-June 2013. *There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 11/5/2017 12:03 PM (GMT -7)   
sorry you are dealing with this crap. I can empathize.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/6/2017 4:39 PM (GMT -7)   
Thanks M09 and T,

Jumping Jehoshaphat,

'kay, so now day 15ish.

On Sunday, I noted that I felt considerably worse after taking my Cymbalta, so I decided just to stop cold turkey.

Yeah, not my best moment.

So, day 2 without any Cymbalta. My head is wooshing, my vision is blurry, my eyes are noisier than a Masey Furgusen tractor, and I keep walking in to walls. I'm dizzy, crabby, and my body keeps spasmodically jerking. My coworkers think I'm drunk. I'm going to assume with the 12 hour half-life of Cymbalta, it should effectively be out of my system in 72 to 96 hours. Of course, that's not indicative of how long these side effects will continue.

THERE IS SO MUCH SUCK IN MY BRAIN RIGHT NOW!

And, to top it all off, my cat is REALLY mad at me because he doesn't understand daylight savings time, and his kibble feeder thingy is dispensing breakfast an hour after his stomach tells him it's breakfast time.

If I wasn't so nauseous, I'd eat a gallon of Haagen-Daas

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 11/6/2017 5:34 PM (GMT -7)   
F27

Try drink hot water with lemon slice in it! Honest

NO sugars. Sleep as much as possible.

I think this will help a lot.

Peace and strength
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/7/2017 7:19 PM (GMT -7)   
Thanks T, I was all about the lemon water today. Gonna detox if it kills me.

So, new symptoms. Apparently this song makes me cry:

Sarah Shook and the Diasarmers

like flat out, gotta pull over cuz I'm sobbing. Really though, if you're interested in music with real emotion, you could do worse.

Also, I had a screaming fight with SIRI. Stupid idiot can't understand a darnnn thing.

AHHHH - I want this over.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 11/8/2017 9:23 AM (GMT -7)   
breathe, it will be soon
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/8/2017 9:35 AM (GMT -7)   
Hey F27,

Keep hanging in there. I hope you make it through. I have never made it that far without going on another medication. So this is a Milestone!!!

Better days are yet to come.

Take care...

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/10/2017 3:05 PM (GMT -7)   
Here's an update for all those who may read this years from now in an effort to normalize your own AD discontinuation.

It's day something or other since I stopped Cymbalta completely (10ish?). I'm not sure what day actually, cuz me and math aren't getting along right now (see previous sentence). The noise in my skull is getting marginally better, although it's every bit as loud and annoying. Thankfully, the noise only crescendos every 5 or 10 minutes, instead of relentlessly. I'm still bouncing off walls (literally) and am dizzy AF. Life is okay as long as I don't move.

Emotionally I'm crabby but okay. As much as I want to start my replacement AD (Zoloft), I'm going to wait until the SFX from the Cymbalta discontinuation fade into the backgroud. I really want to be able to evaluate the Zoloft on its own merits so I can make a reasonable decision about if it's for me. At this point, I fear the Cymbalta discontinuation SFX would colour the Zoloft start-up SFX, and I could be in the same situation 6 months from now, with a brain that sounds like a box full of rusty tools, and not know why.

Oh yeah, the nausea is a real treat too.

And I may have ordered a new phone because Siri and I now officially hate each other. That's reasonable behavior, right?

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2470
   Posted 11/11/2017 5:27 AM (GMT -7)   
I hate Siri too. She never has the answer to my questions-sorry I can't search the internet while your in the car. If I ask directions to a place she'll say you want directions to "some totally random place that sounds nothing like I said" I curse her out and she tells me That's not nice. LOL

Wishing you all the best

I'm not familiar with your condition-have you thought of trying to discontinue all AD drugs and try to use talk therapy and other coping skills?

This is coming from someone who only suffers from what I'd call situational depression- not clinical.

However I have been prescribed AD in the past and all I remember are disturbing side effects and not much if any benefit.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10015
   Posted 11/11/2017 5:45 AM (GMT -7)   
Holy crap, that sounds as almost as bad as my oxycodone withdrawal, which was hell on earth. But I stopped 60mg Cymbalta cold turkey without any issues at all. Brains are strange.

(Somewhat ironically, I'm back on the Cymbalta again for lack of anything else to try. But at 30mg this time and sticking with that for now.)

Here's hoping that the worse is over and it slowly gets better from here on in. PS: Try ginger beer for the nausea.

What new phone did you order? <_<

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/11/2017 10:12 AM (GMT -7)   
It's truly a horror show, and far more difficult than I anticipated. I was hoping for a week or two of zaps, similar to Lexapro withdrawal, but this is freaking peerless.

Got another Samsung. I may be the only person who will admit to liking the Samsung TouchWiz skin: I love how efficient it is. Was gonna get a Pixel this time but Google still appears to have some hardware growing pains.

Ugh, time to get out of bed and listen to the sand shift around in my head.

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 6087
   Posted 11/11/2017 10:31 AM (GMT -7)   
May the medication gods take pity on you soon.

I have had a bad few days--ran out of my pain med and have been waiting for it to come mail order. It is not withdrawal but am unable to keep a position very long due to the pain. Not sleeping well, not thinking clearly. I have been taking OTC painkillers, but it only a matter of time before that zaps the colon.

*sigh*
Ulcerative Colitis 2003, Fibromyalgia DX 2005, Crohn's 2013, Enteropathic arthritis, 2013. Family History of Fibro--2 out of 3 siblings diagnosed. Started SCD-June 2013. *There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10015
   Posted 11/12/2017 4:10 PM (GMT -7)   
Yes, what Myself said :-/

My stomach is in ruins, so I'm gonna have an early night and read in bed. Between your head and my stomach, we can manage to completely physically fall apart.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/12/2017 5:42 PM (GMT -7)   
since we are talking about pain and yuckiness now, I have to add my back has been aching all day. Damp cold weather goes right through a person. Suppose to have a freezing rain mess tomorrow morning, I hope it changes.

Hugs to all...

Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19902
   Posted 11/13/2017 3:53 AM (GMT -7)   
healing thoughts my friends.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/13/2017 7:49 AM (GMT -7)   
Thanks Jamie, Healing thoughts to you too.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/13/2017 11:42 AM (GMT -7)   
"Once I cried because I had no shoes, until I met a man who had no feet."

So, I'm walking from a parking lot to the hospital's main entrance to visit my mom. The gravel in my skull is shifting noisily fore to aft, my eyes are making scraping noises when I move them from side to side, and there are all sorts of chitinous insects running around in my ears.

I'm feeling sorry for myself and wondering if I could somehow hack into my brain to shut off my hearing. I hack computer stuff all the time, so hacking my brain should be do-able.

As I rounded the corner I noticed a cold, hunched over hobo sitting in the snow in a spot that was out of the wind. Imagine my surprise when I saw the sign he was holding that said, "I have no ears, please give what you can." I looked at his head, and sure enough, he had no ears!

Wow! My mind was blown!

I grabbed a pen and a napkin from my coat and wrote him this message: "Get a job ya pr7ck. Maybe then you can afford to buy some ears."

I threw the napkin in his lap and went to pay for parking.**

Did I mention that this Cymbalta withdrawal thing is making me crabby? ;-)

On the upside though, I'm really starting to feel better. Man, this has been rough, but I'm looking forward to better times.

** this may, or may not have really happened.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/13/2017 12:42 PM (GMT -7)   
My my,

Are you sure you can't start the new med sooner? You have been going through the withdrawal symptoms for a bit now. I couldn't stand more than a couple of days myself. It is torture.

I hope that you feel better real soon.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies

F27
Veteran Member


Date Joined Feb 2016
Total Posts : 866
   Posted 11/14/2017 1:51 PM (GMT -7)   
Day two of trending upward, woohoo! The brain zaps are pretty much gone, and the other SFX are becoming less frequent. Generally I feel normal for most of the day, although the evenings are still challenging.

Won't start Zoloft until my sleep studies have been completed. I have a 'sleep-over' scheduled next week at a sleep clinic, and follow up testing set up for the next several weeks. Ultimately, we're trying to establish a baseline so we can track how different medications affect my sleep. This is a slight change in the original plans based on my assessment that my sleep is better without antidepressants.

Truthfully, I'm looking forward to the AD break. I'm enjoying the expansion of my emotional bandwidth, and all the good and bad parts that expansion entails. I may be quicker to anger, but I'm also quicker to laugh, which is a nice tradeoff. I'm nowhere near a relaxed as I was, but I have more energy now - again, a good tradeoff.

So yeah, I'm a little bit crabby, a little bit happy, and actually feeling optimistic for my health for the first time in a couple of years.

GettingBy and M09 - I hope your pain level is going down. Chronic anything sucks, and chronic pain sucks a lot. NCOT, I miss you. I wish that you felt better H&S&S.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 41820
   Posted 11/14/2017 2:34 PM (GMT -7)   
So glad you are feeling better F27. It is nice to know there is life after AD's. That the symptoms do go away.

I hope you have an awesome rest of the day...

Back pain easing up some but this damp weather does not help.

Hugs, Karen...
Moderator-Depression


fibromyalgia, Chronic fatigue, depression, allergies
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