I can understand. Whenever diagnose with a life changing illness, mine was Crohn's Disease, it is natural to feel a great loss. the best advice I can give you is if you feel like screaming, scream. Go out whereyou can't be heard by anyone and let it all go. I spent 35 years keeping the happy face on dealing with my illness when inside, there were days that it was all I could do to get out of bed. Hopefully you will get some relife soon and feel like you are able to lead as normal of a life as possible. If you need to talk, my email link in HW is active. drop me a line. Best wishes!
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
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Dx'd with Crohn's at age 12.
Symptoms since age 5.
Learning to live with this Disease rather than be its victim after 34 years.