@Karen - Well, the day started off with a rare bit of good nice, which was nice: I'm uveitis-free in both eyes! :p
So the first half was really
good, but must admit it started to suck later on. For a start the warm, sunny weather has been totally replaced by cold, drizzly weather. Don't mind the rain so much, but the cold is wearing on my nerves after an exceptionally lengthy winter and cold snap in February/March. Wish it would get warm and stay warm - also, I swear sunlight helps my uveitis.
Oh yeah, how could I forget?? My mum called the hospital yesterday to find out if I was okay: my support worker rang me today to tell me about
it. She (the support worker) is going to come over to my flat at 1pm on Thurday to support me in phoning my mum - fair play to her, I appreciate the actual support on this one.
So I'm pretty apprehensive about
that, which in turn triggered a panic attack about
everything else. It didn't take the form of a typical panic attack, so I didn't actually recognise it as such until it was over. But panic/fear was definitely at the heart of it.
Hope you had a good day too! It's getting late here. I'm thinking of taking an amitriptyline to help me sleep. I'm not fond of the grogginess it leaves me with for the rest of the day, but I think I sorely need to catch up on some sleep.
@pitmom - Oh gosh yes, I'm always worried about
people's reactions and making things even worse.
I've got a massive scar on my stomach after two
open surgeries. Oddly that doesn't bother me too much, probably because I already hated my stomach before surgery and so adding a scar to it didn't make that much difference. I just wish I was a bit taller, had a better figure, had less crap hair and so on.
Yes, I think I have a brain which needs to be kept occupied, no matter how inanely. I do crossword puzzles, jigsaw puzzles (no pets), colouring in, video/mobile phone games. I will also browse the internet for hours on end. On the other hand, I can't sit still and read a book for hours like I used to; I can't concentrate on the story. (The internet is different in that you can flit from site to site or from thread to thread.) I want to regain my active concentration, which is a lot lot easier said than done. That said, I've just started on a new book which is quite enjoyable so far, so I'll see how that goes.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)