Just got in a little bit ago trying to put together my first wooden swingset. My hands hurt so bad I could cry. I am glad that you got my post. Lucy, I understand fully what you are going through and it is one of the roughest realizations in the world. To finally realize that noone in the world can do for you what you know needs to be done is a horrible feeling.
This recent medical problem I am having is heart related. A little over a year ago I had an ekg which showed I had a small heart attack. I was shocked! I never experienced chest pain or anything like you would think. I am in the medical field so I thought maybe it was a fluke. The did do a couple after that and they showed the same thing. When I had my VNS surgery, it was brought to the doctors attention but he said that it was fine and proceeded with the surgery. I know wonder what would have happened if I would have not lived. He would never had made mention of this small abnormalty of a heart rhythm.
Now it is a little more serious but I am so depressed over issues in my life that I use this mentality. I need my mental health and I try every day to do ok, if I don't have my good mental health, this physical health is not a concern for me. To some people that sounds selfish, I just have a hard enough time making it day to day recently. The good Lord will take me when it is my time no matter how healthy I am.
Anyway, stay on top of what issues you are seeking and don't let those docs tell you what they think you should hear.
I am here to pray for you.