I found Healing Well last year, I'd been struggling a lot. I know pretty mch everything I'm ever going too need to know abotu Cystic Fibrosis, but I needed support. My doctor's had been posting and having a go at me in clinic about
my postings on another forum, rather than seeing it as a cry for help, and to be honest I was being totally truthful in my posts, they took it as a mark against them and got angry at me.
I then found this forum one day when looking something up. The support I received here, in my first couple of months, was fantastic, everyone had time too help me when I needed it, and when I didn't I found it very helpful, and helped me find my own answers, by helping other people on here.
I decided too voluteer too be a mod. I have a lot of spare time on my hands, so thought I would put that too something useful. I'm really glad I did though, Healingwell has been just amazing for me, and so many members and other mods have had patience for me, when I've needed it. At the same time, I've felt able too help people, and give something back in return.
Part of our jobs as mods, is too keep the environment friendly, happy and safe. This does mean removing Spam and swears-but, well someone has to do it! Most mods on here are normal-infact I may be the only one who realy crosses the barrier into weirdness. 21 year old uber geek and I also have a weird obsession with shiney things and gummy bears. I still have some normal in me though somewhere.........I think.
Co-moderator in the: Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Saline neb/PEP system, Mirtazapine,slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05