Hi Dagger (and others),
This is my first time on the diabetes forum, I've been on the Lyme one only.
I seem to have what you have. One doc called it pre-diabetes / syndrome x? Pain when I don't eat?
I don't have a direct answer to your question, I'm sorry. But maybe you can put more pieces together from my story.
That doc wanted me on glucophage 1500mg. I was falling asleep while driving though so I lowered it to 500mg. Now I'm taking just supplements (glysen and protoglysen, Apex Energetics). The doctor and his office never called me back. I am still looking for an endo.
I think infection pushed me towards the place I'm at now (had what I THOUGHT were adrenal crises where I became suddenly dehydrated and unable to move), but now I'm thinking it might have been 'hyperglycemic hyperosmolar crises'.
Now I don't have the 'crises', but I have nighttime (brink of sleep) partch that keeps me awake. I also cannot take anything anticholinergic, water sapping, etc. Taking benedryl will likely make me end up in the hospital. I'm taking medium chain triglycerides and other supplementation like crazy amounts of EPA/DHA in the nighttime helps. Hey, I think that what would be interesting is for both of us to have our fatty acid and amino acid levels checked after a fast. I know it is hard to do that but I have a hunch that we would have radical differences in levels from when our stomachs are empty and full. Or early AM (after sleep) and mid-day.
I got deathly ill when I did a colonoscopy prep (the liquid drink). I took the pills another time and had moderate issues (didn't need to go to the ER).
Those attacks I think aren't happening anymore (not that I've had another colonoscopy, but in general).
I do have an endoscopy scheduled for Thurs and I have to not eat for 6 hours, appt is at noon. Stinks. I too, feel pain when I don't eat every two hours. I think it is because of this HHS syndrome-I lose fatty acids QUICKLY and have gut pain and feel just awful. Rare to have it without having diabetes, from what I read.
Ok hope this helps.