Healthcare woes.

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David A
New Member

Date Joined Jan 2005
Total Posts : 2
   Posted 1/13/2005 7:03 PM (GMT -7)   
I've been searching up and down for a good diabetes forum on the internet where I can vent my frustrations. I don't know if this place counts, but I'm going to vent anyway.

I live in Ontario Canada. I've had type 1 diabetes since 1998. I'm 29 years old now. I've had 2 "specialists" since being diagnosed. Neither of them was worth spit.

The first man couldn't be bothered to explain or console a 23 year old guy who has just been told his lifestyle is about to radially change. He couldn't have cared less what was going on in my mind. He didn't even take the time to educate me -- he handed me a bunch of pamphlets instead. He was rude and unapologetic and a complete waste of time. What's more, he perscribed me -- a 23 year old male who has just moved out on his own -- 2 shots of combined insulin a day. I assume he'd never heard of MDI treatment? Did he expect that I was going to suddenly lead a senior sitizen's lifestyle right out of the gate? Was this moron thinking at all?

Ok. A year after that, I moved to a new town. I didn't have a G.P. and I didn't see an endocrinologist for many years during which my diabetes was mostly un-monitored. I didn't even own a proper glucometer for most of this time. Eventually, I get my act together (with the encouragement of my lovely fiance) and find get a referral to an endo through a local clinic (still no G.P.). From the first moment I'm introduced to the woman, I know right away that I've made a mistake. I indicated to her that I was in school and that I was very interested in insulin pump therapy as I believed it would cure many of the control problems that I'd been wrestling with. She would have nothing to do with it, and even chided me for puchasing a glucometer that (god for bid) recorded and downloaded my readings to my PC. She refused to look at any of my numbers unless they were HAND WRITTEN. She claimed that, unless I was hand writing them, that I was not "engaging my diseas". Understand, that I'm a technical person. I work with computers for a living (at the time, I was in school for computers and I've always had a thing for techology). If writing down numbers was her way of "engaging" thats fine, but what the hell does that have to do with me?

So, months later, I finally find a G.P. in my area. She's great. Young and forward thinking -- fresh out of med-shool. I tell her my dilema and she nods and indicates that she will refer me to the place she did her internship which has a very good diabetes clinic. I'd spoken to another type 1 who was using an insulin pump and she'd gone to the same clinic and was quite happy. So was I. That was in October.

I'm still waiting for my appointment. It was cancelled last week because the nurse who I was supposed to see called in sick. Now I have to wait until Feb. before I can get in. In the mean time, I've picked up some literature on insulin pump therapy and I'm in constant awe. I can't believe this was never suggested to me before. I don't understand how the ball got collectively dropped by pretty much every health-care professional I've seen.

Can you see my frustration? I'm not sure my words are getting it across properly. Incase you don't: AHHHHHH!!!!

Pin Cushion
Regular Member

Date Joined Feb 2003
Total Posts : 442
   Posted 1/14/2005 7:49 PM (GMT -7)   
Hello David,
Welcome to our forum. I am glad you felt you could vent here cause we all need to at times!
I have been a type 1 for about the same time as you and have been through many simular situations.
I too have never been to an endo. I have an appointment with one but it isn't until April 6th. I too have been battling my glucose readings and believe an insulin pump would be the answer, but I don't think that is going to happen because my insurance will not cover it.
But like you I won't give up without a fight.
So hang in there and keep posting your thoughts and ideas - together maybe all of us here can make things happen!
23 months Sigmoid Colostomy / 20 years Crohns / Type 1 Diabetic 6 years / Ostioarthritus 14 years / Asthma 21 years.

* I think it may be time for a colorful metaphor*

David A
New Member

Date Joined Jan 2005
Total Posts : 2
   Posted 1/18/2005 8:08 AM (GMT -7)   
It's good to know that I'm not the only one, though I wouldn't wish this on anybody.

It's difficult to believe that, with all of the research money and "cure diabetes" initiatives that I see going on, that diabetics have a difficult time just getting treatment. It's very frustrating indeed.

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 1/20/2005 10:07 AM (GMT -7)   
Hang in there. I'm just starting insulin at the end of the month and find that I am very lucky to have the physician I have. But I started out with her husband (they are both in the practice) and he wasn't as understanding nor did he have me monitor or exercise... told me to check my readings about once a week ... DUH? She has me swimming, made me take classes, just plain jumped all over me about taking readings and eating right... and I listened. My disease is progressing but I'm holding my own. One huge help I got was from subscribing to Diabetes Self Management Magazine. It's put out by the American Diabetes Association.. Tons of information, recipies, evaluations of monitors, health equipment, foot care... you name it! I believe you should be able to sign up online and it comes every 2 months. I have subscribed since I was diagnosed and it's been like my new best friend. Hope this helps.
~ Jeannie

"As one goes through life one learns if you don't paddle your own canoe you don't move."
-Katherine Hepburn

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