Steroid induced diabetes??!

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Rose*flo
Regular Member


Date Joined Apr 2015
Total Posts : 308
   Posted 2/2/2016 6:46 PM (GMT -7)   
Hi all, I hope it's ok to cross post on here. Have Crohn's so I posted in that forum as well, but thought my question might be better answered here...

I woke up this morning wth extreme thirst. I have been drinking and urinating tons all day. My mouth is also very dry. I have been extremely fatigued for months. I am worried I have steroid induced diabetes. Anyone know anything about this? I had never heard of it until today. Can it come on suddenly like this? Going to my PCP tomorrow, but wanted to get some feedback before then..
I'm on 9mg Entocort since August, 8mg medrol for about 3 weeks, 6mp on and off it for a couple weeks
Thanks for any input!
35 yrs old. Diagnosed '05
Gigantic rectal abscess surgery
Failed Fistula flap/plug
Permanent Seton
Many drug allergies and sensitivities (allergic Remicade)
Feeling healthy for 8 years with no meds
current flare with disease in Ilium and entire colon.
Current, Entocort, Florastor
Still no symptoms besides rectal pain.
~mom to awesome 14 year old son that needs me healthy

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6030
   Posted 2/2/2016 6:59 PM (GMT -7)   
Welcome to the Diabetes Forum, Rose*flo. Yes, of course it's fine to post here! I hope we can help! Here is what I found about Entocort side effects: www.webmd.com/drugs/2/drug-22007/entocort-ec-oral/details#side-effects

If you've taken other steroids before, especially for long periods of time, then it's possible that you could be having problems with blood sugar. Normally when these drugs are prescribed, the doctor warns the patient and sometimes may even put the patient on diabetes drugs temporarily while taking the steroids.

The only way to know if your blood sugar is not normal is by blood tests. I don't know about symptoms like you're describing appearing suddenly, but since you're experiencing some strange symptoms, tell your doctor when you see him tomorrow.

I know that if a patient has a family history of diabetes that sometimes steroids can be a tipping point. Better to look into this now! I hope your doctor's visit can give you some answers!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Rose*flo
Regular Member


Date Joined Apr 2015
Total Posts : 308
   Posted 2/2/2016 9:03 PM (GMT -7)   
Thanks Lanie! I took prednisone from August - October as well. Now just the Entocort and medrol. I am going to the dr at 11 and they will probably want to do some labs. I would just want to do them right away and get it over with. Do you know if I would be able to drink water in the morning before the test? I'm pretty sure I would have to fast with food. I haven't been as thirsty tonight, but a lot of my symptoms point to diabetes:(
35 yrs old. Diagnosed '05
rectal abscess surgery
Failed Fistula flap/plug
Permanent Seton
Many drug allergies and sensitivities (allergic Remicade)
Feeling healthy for 8 years with no meds
current flare with disease in rectum and entire colon.
Current, Entocort 9mg, medrol 8mg, 6mp 50mg
Still no symptoms besides rectal pain.
~mom to awesome 14 year old son that needs me healthy

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6030
   Posted 2/3/2016 5:49 AM (GMT -7)   
Sorry I wasn't online last night to see your post. Don't worry about fasting or not. They can do a random blood sugar test right then when you're in the office and another blood test which measures the average blood sugar over the previous three months (called the A1c). If either of those are elevated, then I would think the doctor would want to check further and might have you do a fasting blood test.

Good luck today and I hope you can get some answers to why you're having these symptoms! Keep us updated!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

MusicForLife
Regular Member


Date Joined Nov 2014
Total Posts : 380
   Posted 2/3/2016 10:58 AM (GMT -7)   
Sorry, I looked at this too late! I was told I can definitely drink before a blood test. It helps in many ways... it's supposed to help with the veins for the blood test (make them easier to find, I believe) and then if you have to have a urine test you'll be more prepared...

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 2/3/2016 8:18 PM (GMT -7)   
I was on Prednisone about half the time for two years. During this time I developed elevated blood sugar from the steroids. Yes, essentially steroid-induced diabetes. Once I was able to get off the steroids, my sugars returned to normal. Several years later, after I'd been on Entocort for about three years, my glucose moved into the diabetic range again. This time, it didn't resolve when I came off the steroid. I've been completely off steroids since early in 2006, but still have type II diabetes. Steroids are the gift that keeps on giving.
Thyroid forum moderator

Ulcerative colitis; 10thyear of remission with Remicade. Inflammatory osteoarthritis; osteonecrosis from steroids. Grave's disease post-RAI and now on Levothyroxine. Type II diabetes induced by steroids. #ucsucks

Rose*flo
Regular Member


Date Joined Apr 2015
Total Posts : 308
   Posted 2/17/2016 8:45 PM (GMT -7)   
Update: thanks everyone for your replies. The dr ran some tests and did not seem concerned diabetes. So that's good news. I was not fasting and I only talked to the nurse on the phone, but I go in for a follow up Friday so I will know more. The extreme thirst and fevers went away after I stopped one of my Crohn's meds so I guess it was a reaction to that. Scary
35 yrs old. Diagnosed '05
rectal abscess surgery
Failed Fistula flap/plug
Permanent Seton
Many drug allergies and sensitivities (allergic Remicade)
Feeling healthy for 8 years with no meds
current flare with disease in rectum and entire colon.
Current, Entocort 9mg, medrol 4mg,
Still no symptoms besides rectal pain.
~mom to awesome 14 year old son that needs me healthy

Rose*flo
Regular Member


Date Joined Apr 2015
Total Posts : 308
   Posted 2/17/2016 8:48 PM (GMT -7)   
Jujub, that's great you were able to finally get off the steroids! May I ask what dose Entocort you were on for 3 years? I have been on 9mg since August
35 yrs old. Diagnosed '05
rectal abscess surgery
Failed Fistula flap/plug
Permanent Seton
Many drug allergies and sensitivities (allergic Remicade)
Feeling healthy for 8 years with no meds
current flare with disease in rectum and entire colon.
Current, Entocort 9mg, medrol 4mg,
Still no symptoms besides rectal pain.
~mom to awesome 14 year old son that needs me healthy

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6030
   Posted 2/18/2016 5:45 AM (GMT -7)   
I hope you're feeling better! Paying attention to your health is important.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 2/18/2016 12:18 PM (GMT -7)   
I was on 9mg. (the maximum recommended dose). It's especially annoying because it never really helped me, and it gave me osteonecrosis in my shoulder as well as diabetes. At the time, I don't think those side effects were documented. I started seeing reports of both at the time I was developing problems. After my first surgery for the osteonecrosis, I knew I had to get off steroids. I was scheduled to start Remicade, and tapered off the Entocort before I started the Remi.

I see that you're allergic to Remicade. Have you tried Humira or another TNF-inhibitor? Remi allergies are often related to the mouse protein in the drug, where Humira is grown in human tissue and contains no foreign proteins. Often people who develop allergies to Remi can tolerate and be helped by one of these other medications.
Thyroid forum moderator

Ulcerative colitis; 10thyear of remission with Remicade. Inflammatory osteoarthritis; osteonecrosis from steroids. Grave's disease post-RAI and now on Levothyroxine. Type II diabetes induced by steroids. #ucsucks
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