Son not diagnosed with type 1 despite symptoms

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Jingles1234
Regular Member


Date Joined Jul 2016
Total Posts : 122
   Posted 10/7/2017 10:12 AM (GMT -7)   
My 3 year old was admitted into the hospital earlier this week due to increased drinking, eating and peeing along with personality changes and blood sugar of 241.

They immediately ruled out type 1 because his A1C was 5.2. They then ruled out diabetes insipidus, addisons disease and insulimnomas. They also had me and my son sit with a psychologist to make sure we don't have mental problems.

Over the 4 days we were there, they only did one post meal (chicken breast, green beans, 4oz Apple juice and 3 bites of an apple) blood sugar and it was 238 3 hours after eating. It came down to 100 4.5 hours after eating so they said that that confirmed it wasn't diabetes.

He had one fasting glucose of 108. Three other fasting glucose were mid 80s. He also had a blood glucose drop to 42 without medication.

We were discharged with instructions to monitor his food and water intake and take blood sugar at home. We're to follow up with endocrinology in a month.

Has anyone had this only to later be diagnosed with type 1? I'm wondering if we need a second opinion and where to go as we were at our state's most renown children's hospital.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5975
   Posted 10/7/2017 11:47 AM (GMT -7)   
Hi and welcome! First of all, I don't know specifics about type 1 diagnosis in three-year olds, but this is not a mental problem. He has blood sugar problems and needs to be re-evaluated now.

Yes, I would get another opinion, preferably an endocrinologist who specializes in juveniles.

The best advice I can give you (as a non-medical person) is to keep his food steady in the carbs, preferably low carbs. That is, don't give him macaroni and cheese or other food that is carb-based.

Protein, vegetables, peanut butter, cream cheese, regular milk, celery. No crackers.

Frankly I don't understand at all their comment about his blood sugar going from 238 postprandial to 100. They said it confirmed it wasn't diabetes? How on earth?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/

Jingles1234
Regular Member


Date Joined Jul 2016
Total Posts : 122
   Posted 10/7/2017 8:29 PM (GMT -7)   
Thanks, Lanie. Our 4 year old has celiac so our whole family only eats meats, veggies and fruits. We don't eat anything processed at all. Should we limit fruits?

He has an appointment with a pediatric endocrinologist, but it's the same hospital system. So I'm wondering if I should get a second, second opinion.

Yes. They said that because his body can bring the sugar down from 238 to 100 on its own, then it's not diabetes. They also said that because the sugar isn't spilling into his urine, then it's not diabetes. And because he had a hypoglycemic incident without giving him medication, then he Can't have diabetes. I'm not a doctor, but I'm just wondering if maybe we're at the beginning stages of the disease.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5975
   Posted 10/8/2017 6:47 AM (GMT -7)   
Gosh, I just don't know, to be honest. That's a good point that his body brought down his blood sugar by itself but the question and the worry is why is was so high to begin with. Also, it's very good that there was no spilling of sugar into the urine!

If I were you, I'd keep the appointment with the pediatric endo. Even if it's the same hospital system, this is a specialist who knows children's health.

I hope he's doing better. Keep us updated.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/
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