The past couple days have been really nuts. Monday morning I called to get an appointment with her pediatrician as I was told to do at the hospital. They told me to come in at 10, so I did. When I got there the pediatrician asked me what made me worried about her blood sugar. So I told her she was drinking alot, peeing alot, tired, etc. Then she turned to me and said, "Well, what business do you have with a blood testing meter?" (I have told her many times that I have diabetes.) I said, "27 years as a type 1 diabetic is what business I have with one, not to mention you can buy them anywhere." So then she asks me what right I have to take her blood. I am thinking, "Lady, you are acting like I am giving my child narcotics, not taking a drop of blood out of her finger!" I told her the hospital recommended a glucose tolerance test. So she writes me a prescription and tells me to schedule one at the front desk. After I schedule the thing I notice on the slip the receptionist gave me it says, 1 hour glucose tolerance test! So, I am wondering what good is a one hour gtt since your bs spikes 2 hours after you eat. So, I just drive on home and call the Joslin Diabetes Center. I got lucky and the CDE had actually been the one to answer the phone. I told her everything that happened at the pediatrician. She told me to take her to Children's hospital either that night or the next morning. She said it could wait until the next morning as long as I was keeping her numbers reasonable by her diet, but if it went over 200 to leave immediately or if I saw any ketones. My husband was really tired and I wasn't feeling well by that time, so we waited until morning. Yesterday morning I took her to Children's with my Dad. At the ER desk they asked me what had brought us to the ER. I explained what had happened and that I wasn't real comfortable with trusting the pediatrician at that point. When I told them what she said about me testing her blood sugar every staff member turned around and looked with a completely amazed look on their faces. When the ER doctor saw her and I told him what had been going on he actually apologized to me on behalf of the entire medical profession! LOL Then he told me that first off I have EVERY right concerning my child. That doctors and nurses get the privilege of caring for my child only if I give MY consent. Then he said and as for the business you have with a meter, beyond knowing you are a diabetic for your daughter's history, it is none of her business. Then he said he couldn't believe she was offended that I was doing something to help my daughter and make the job of the doctor easier. I had kept a log of every before meal and pp reading I had on her along with a food log with every bite she consumed, including how much. He told me it was wonderful information that would help them to help her. He said with my careful monitoring of her diet and her blood sugar readings as well as that I was checking for ketones if I saw a higher number he didn't feel she would need hospitalized. I have managed to keep her numbers mostly good with her diet. So, he sent us home, told me to continue doing just as I am, make an appointment with the endo for 2 weeks, and good luck in getting another doctor! LOL They didn't start her on meds since her numbers have been good on diet. He said they may add a med in two weeks after all the labs have come in and we see how she does on the diet only for two weeks. Of course, if she starts having a lot of highs or won't come down or spills ketones we are to go back to the ER.
What doesn't kill you makes you stronger. Shouldn't I be invincible by now?