Oh dear, I'm so sorry for my bluntness. So sorry to have scared you. I've been diabetic since 2001. Actos 30 mg/day. Never been put on diabetic diet. Diabetes well under control. Docs say keep doing what ur doing. Never heard of carbs and neuropathy. Love my carbs. They'll have to pry the pasta from my cold dead hands. Looking back my neuropathy signs started long before being diagnosed as diabetic. Approx 1997. Extremely hot, burning feet. Thought I had athetic foot prob., or allergy, doc said no. The progression is so slow, but methodical. One day your toe is half numb. You think nothing of it. Several years later the numbness has progressed but now your feet are cold as ice one minute and you grab an extra pair of socks (but its summer). Slowly but surely your nerves keep dying or misfiring and it doesn't stop. If you aren't happy with your doc, get another....they are a dime a dozen.
The neurontin, carbatrol, tramadol, lyrica, topamax are mostly seizure or miagrane meds. I am NO doc. Anyone out there please correct me if I am wrong. My understanding is they block the message or "turn down the volume" of the messages from the nerves in your feet going to your brain. Some work, some don't. I still haven't found the right one for me. The other pain meds I mentioned are for "break through" pain. Pain that persists to scream or spike while the other nerves are behaving in quiet time because of the meds.
Do not be complacient. Do relentless research. Ask questions. Demand answers. As long as there is breath in my body, I will not become the lady taking 240 mg of oxycotin a day. She said she prayed for a miracle. I'm hoping to find one for me and for her. I cannot tell you how much I have cried and prayed for her since we talked last Friday. She's given up. If you believe in prayer, say one for Vivian. She lit a fire in me that has made me rethink about my own pain. I've got no right to whine. I've got no right to *****. It IS however my privledge to fight like hell to learn as much as I can about this nasty disease that so few have heard of.
Nice to meet you Ruth! I have 3 sons and two german shepherds (also males) Maybe the root cause of my problem is too much testosterone!!!!!!!!!!!!
Hmmmmm. If it's all about
the testosterone then I'm in trouble, too! Nice to meet you, Murph. I recoginze the anti-seizure/migraine meds because I've been on some of them. This morning I read sometimes those are used but I wondered exactly in what regard.
I'll join you in your fight and I will NOT be complacent!!! And I have prayed for your dear friend.
Edited to ask ... were you being sarcastic about
not knowing about
carbs and diabetics? Do you still eat a lot of pasta? If so, I want to gently tell you something. Really. From one diabetic to the other. Knock off the carbs. Read "The Diabetic Solution." We'll keep talking and will encourage each other alone the way. Honest.
I appreciate "blunt" and am glad to hear more of the story! You have every right to whine, b*itch, and fight like a mad woman. This is the place for it.
age 52/Type 2 diabetic/"controlled" by diet and exercise
Post Edited (4sons) : 7/3/2007 5:59:07 PM (GMT-6)