hi gracies mum,
well i am not too sure why this new information has come out, i do think that the epi dr has looked through my medical notes and then drafted a letter based on what she found, not knowing exactly what other dr's have said to me.
I have had a feeling all along that dr's were making a false diagnosis, simply becuse i proved to be a challenging case to them, if the cannot find a cause then why not put it down to stress, even if the patient clearly states that they are not stressed.
Dr find it so difficult to admit that they made a mistake.
On a number of occassions dr's failed to look at my medical records properly, and the results of the numerous eeg tests which i have had done. If id didnt know to mention what i have had done and understand the results somewhat then i would still be getting nowhere now.
my medical history isnt that complicated for them too over look the results surely the only past medical history i have is psoriasis and migraine oh and viral meningitus.
I have lost all faith in the healthcare system, i believe if you want something sorting you have to sort it yourself.
the epi dr hadnt really looked at my notes, she was briefly reading through them while i was sat that and trying to piece everything together abouth what had been happening and i was trying to fill in all the gaps, so after i left i think she may have then looked at my medical records in more detail and found out more info about my seizures and the tests which i had done.
well been scheduled for urgent sleep deprived eeg so g the impression she may be somewhat concerned that i have been left this long without treatment, and on the letter it says if there are any abnormalities on the eeg recording the she will insit i start taking aed's as i am reluctant to do so.