1 year old with eye rolling??

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Regular Member

Date Joined Jul 2006
Total Posts : 77
   Posted 3/6/2008 9:59 PM (GMT -7)   
Hi... I am usually on the crohns board but was stopping by to see if you all could help me out..my son who is now 1 year old has been doing an upward eye rolling for a few months now..at first it seemed slight and infrequent then one day it seemed to increase in episodes and the episodes lasted a bit longer maybe 2 seconds or so..I took him to the ER that day were they did a CT scan and blood work..which was fine.. I took him for an EEG yesterday and the results of that were fine also..although they only monitered him while asleep..he was sleep deprived for the test and then when I got there they wanted me to get him to sleep before they even started.. I thought the whole point of the sleep depravation was to "aggravate" the seizures??..he does do his eye rolls while tired and was hoping the would have seen him do it...the also did strobe lighting while he was asleep also to him..they said it would affect him even while sleeping...?..So now I am at a loss for what else to do..if it is even seizure activity(does it sound like it?)..My ped who is wonderful seems satisfied and wants to just watch him.. I would prefer further testing.. I also brought him to an opthemologist to check his eyes and everything was fine there also...so bascially just wondering if anyone would consider this seizure activity?..should I seek out a neurologist opinion?..For those of you that had to rule out tumors and things..do you think a CT scan was enough??..Sorry if this is scattered brained: )... Any advice would be greatly appreciated!!
25 years old..Just had my second baby(a son)born Feb. 26th..using 75mgs of Imuran...He is perfect in everyway: ).Been on the BIGGEST Crohns "rollercoaster"..been down to 88lbs (5'7) about 2yrs ago..very sick..Been on Pred, Pentasa, Entocort, Cortifoam enemas, Imuran, and flagyl and cipro for anal fistula. Currently only taking Remicade and PREDNISONE: (..and it has been my miracle* drug!..(That was short lived: (

Veteran Member

Date Joined Jan 2006
Total Posts : 2408
   Posted 3/7/2008 6:55 AM (GMT -7)   

Hi Danielle,

Does he only do it when he is tired? It could be that it is a muscular problem. It doesnt sound much like a seizure to me although it is a possibility. The fact that the EEG came back clear is a good sign though. If you are really worried about seziure activity, I would seek a neuro's opinion. It doesnt hurt to ask.


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Regular Member

Date Joined Mar 2008
Total Posts : 45
   Posted 3/8/2008 12:49 AM (GMT -7)   
Hi Danielle,

I d go to a Neurologist and if you baby gets the all clear I would just wait and see...
Sometimes babys have seizures when they have fever but that doesn t mean they have epilepsy.
What am I trying to say is if the Eeg and the CT is OK I wouldn t worry to much..
Mabye you can go for another EEG in a few months if it doesnt stop.
Enjoy your new baby and take care,
Cymbalta 60 mg ..up to 90 mg now.. Is there hope....
Epilepsy, MDD, PCOS, insulin resistancy and had disc surgery in Jan.
P.S. I really do appologize for any spelling mistakes! (non native English speaker)

New Member

Date Joined Mar 2008
Total Posts : 2
   Posted 3/20/2008 5:16 PM (GMT -7)   
hi there

my son also did eye rolling and the doctor told me it was a tick, as time went on it got worse and i found that it was worse when he was trying to consontrate.(pausing when speaking NOT STUTTERING)
I went back to the doctor and she sent him for a EEG and it came back that he was having seizures.
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