Concerned about diagnosis of epilesy

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New Member

Date Joined Apr 2008
Total Posts : 1
   Posted 4/21/2008 11:25 AM (GMT -7)   
I am new to the forum, but I have been researching for several weeks for information. So hopefully some of you can give me some insight.
I am a child care provider and I have a 4 year old boy in my care that has been "diagnosed" with "baby grand mal" seizures, according to the mom. When he was first enrolled to my daycare last year, his mom brought me Diastat rectal gel, to be administered if he were to have a seizure lasting longer than 5 minutes. At this point he had not been diagnosed by a neurologist. The ER doctor prescribed Diastat by the mom's description of his seizures. (To give a little background on the mom, she works in group homes for adults with special needs. Many of the residents in these group homes have seizures and are on many different types of anti-seizure meds. So the mom has knowledge of all types of seizures and meds). As to current date, she is the only one that has witnessed a seizure with her little boy. For the first 4 months in my daycare, he was not on any anti-seizure meds and my daycare is a very active daycare. I never witnessed any seizures not even a small twitch or "stare". Mom took him to a neurologist, they did an EEG, it was normal, they put him in front of flashing lights, then another EEG, normal. Mom insisted with the doctor that her son has seizures and she would know what a seizure is. The doctor placed they little guy on 750mg of Depakote. Now several months later, she takes him back to the doctor and tells him her son is still having seizures even when he is sleeping. So he has placed him on 100mg of Topamax and weaning him off the Depakote. This little guy is in my daycare 6 days a week for 10 hours a day, and he has never had a seizure here. Mom tells me he has them before he comes to daycare and after they get home at night. I am very concerned about the child's health. When he is here, he is very lathargic, very slow movement, doesn't play much, cranky, he even blinks very slowly, it takes almost an hour to eat a sandwich. Now to get to the point, my question is; Is it possible for him to only have seizures in front of his mom?
thank you

Veteran Member

Date Joined Jan 2006
Total Posts : 2408
   Posted 4/21/2008 3:22 PM (GMT -7)   
Hi there,

I understand that this is a very delicate situation but I would also share in your concern for the child. Firstly, Diastat is a form of diazepam which is a muscle relaxing drug which is often used in epileptics who have grand mal seizures which last a long time so that part of the story checks out. The reaction you are seeing in the child (Irritability, Slow/Sluggishness etc...) may be as a result of the meds or COULD be as a result of a seizure. I am guessing that the neurologist is looking at a diagnosis of JME (Juvelile Myoclonic Epilepsy). Obviously he has been tested for photosensitive epilepsy (flashing lights) but there are epileptics out there who can have normal EEG's several times on the trot. That usually is an indication that the epilepsy is being caused by an inner structure in the brain beyond the cortex. I guess the big question is whether the mother is lying about the seizures. It sounds very unlikely that you have not seen ANYTHING and it all happens at home but it COULD be true. If the trigger for the childs seizure is a chemical (Like a specific chemical in some cleaning products, shower gels, deoderants etc...) and they are ONLY present in the childs home and not your nursery that may be an explanation.

I can understand why you are concerned and I hope that you stay in contact with us to let us know how you and the child get on. Also, if you have any questions, please ask. There is no such thing as a stupid question. If you dont know... ASK!

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