I am hoping someone out there might be going through a similar experience, or can give me some advice. Almost 4 years ago (age 31), 1 week before the birth of my second child, I was told I had a seizure in my sleep. The only indicator I had was bite marks on my tongue and a feeling of 'wrongness'. The first doctor I saw told me I had the flu and needed vitamin C (!), but the second doctor said no, it was a seizure and so I went for the series of tests. A couple of weeks after my baby was born, I had another seizure in my sleep which my husband witnessed. After more CT scans and an MRI, still nothing obvious was found and I was put on Epilim.
My circumstances changed, and life was pretty hard for a while, and I suffered from post natal depression, chronic sleep deprivation, malnutrition and was a borderline alcoholic. My stress levels were through the roof. I had to wait 9 months to see the only neurologist in my area, and he gave me about 2 minutes of his time to state that if I've had more than 2 seizures, I am epileptic. He refused to consider whether the personal hell I was going through at the time was a cause of my seizures, stating that "if stress was a cause, he would be epileptic". His diagnosis just crushed me, as it also meant the end of my career which I had spent most of my life working towards.
Anyway, I managed to get through my slump, changed from Epilim to Lamictal(nasty stuff), as my hair was falling out, got a lot healthier, got some sleep, and sought a second and third opinion. I saw a Professor who specialised in epilepsy research, and he gave me almost an hour of his time, listened to my concerns and basically said that pregnancy can sometimes cause seizures due to the hormone changes, stress, depression etc., and that after 12 months on lamictal, I could stop the meds and there would be a 99% chance of not having a seizure again - as long as I stayed healthy and didn't get pregnant again.
Well, I've been off the meds for nearly 2 years, and siezure free since August 2005 - well, that is until last Sunday night.
I am absolutely devastated, as I am the healthiest I have been for a very long time, getting more sleep than ever, able to work in my chosen career as I was 2 years seizure free/off meds, and now I go and have a fit.
Is it time for me to just accept the fact that I am epileptic, and move on, or do I keep on searching for an answer? I suppose, I just can't understand how and why it has come on this late in my life.
I would love any comments or advice.