New to Temporal Lobe Seizures and Dilantin

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Shelly Belly
New Member

Date Joined Jun 2008
Total Posts : 1
   Posted 6/15/2008 8:15 PM (GMT -7)   
Hi everyone.  I'm new to the site and new to my diagnosis of Temporal Lobe Seizures.  From what I've read, I get a sense that they're not quite what other people experience.  If there's anyone out there who has the same symptoms I have, please do come forward.
For a few months I bit my tongue in my sleep.
Now that's stopped and I'm having head twitching.  All day every day, my head reminds me of seeing people in movies with Tourette's syndrome.  Nobody else can see it, unless I'm wearing long earrings then they can see them swaying.
I had an MRI and it's clear.  I had an EEG and my neurologist says I'm having seizures in my temporal lobes, more on the left side, but they're happening on both sides.  He says I have brain damage from head trauma.  The only time I had any head trauma that I can think of was a car accident when I was 15.
So, he started me on Dilantin on Wednesday.  Today is Sunday and they seem no better.
So, for those of you who have these types of seizures, does anyone out there experience them in this way (I remember having them, every 5 seconds or so, all day every day, just twitching...)?
Also, how long does it take for Dilantin to begin working typically?  confused And if anyone has had the same symptoms, are you also on Dilantin and is it working for you?  I guess what I'm wondering too is, do you all think I've been diagnosed correctly?
Thanks guys.
Michelle smurf

Veteran Member

Date Joined Jan 2006
Total Posts : 2408
   Posted 6/16/2008 1:31 AM (GMT -7)   

HI Michellle and Welcome to HealingWell!

I am glad that you have found us here and I hope that we can help and support you like we all do with each other here. I have to be honest, I have never heard of 'head twitches' (which are similar to Tourettes) in epilepsy and I know a fair bit. (Although not everything! lol tongue ).

Dilantin is a very old medication but can be very effective. I believe they changed the formula slightly recently though. I would give it 1-2 weeks before making any decisions about whether it works or not. You will have to let it build up in your body first. If you find it is not working, then there are plenty of other meds out there... Carbamazepine / Tegretol & Lamictal / Lamotrigine are probably the most common.

If you have any questions, please ask. There is no such thing as a stupid question if you dont know the answer!


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New Member

Date Joined Jul 2008
Total Posts : 1
   Posted 7/28/2008 1:37 AM (GMT -7)   
Hey there, well just like you I too got the same type of injury in the same area. Although my symptoms are different. What side is yours on right or left? Mines on the left. I didn't get the head twitch like you. I get a full on gran mal seizure. I got other places injured too but the temp lobe was the cake for me. Well its been seven years since I've started having them and throughout that time I've been on Dilantin. For me it was a hard getting me stable. I don't know how its going to be for you but it took a while to get the right dosage of dilantin and mix of drugs. I try to think of it as a custom made out fit for your brain. There going to keep trying different dosages of drug(s) until one fits. My biggest advice is to discuss the side affects and look at all your options.
As far as the dilantin goes, yea I do agree the stuff is old but just give it a while and if it works it works.

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