There must be something in the air/ water this month! I've been having almost daily 'tics' and auras since my event of about
a week and a half ago. I went event free for 3-1/2 years since my major grand mal and craniotomy/ tumor resection. I've been dragging my feet on getting my next EEG & don't know why. I've been checking in here daily though. It helps to talk to all of you.
I sort of willed my self to believe that even though I was on anticonvulsants, I didn't have a seizure disorder for all this time. When I went to my PMD after my recent seizure, he kind of looked at me like I was a nut. ("What were you thinking? Haven't you actually looked at any of your EEG's?") I'm an RN and he actually thought I had reviewed my own record. It's like politicians at work or sausage being made, some things you just don't want to see. I finally sat down in his office and looked. They are pretty bad.
Anyhoo, I truly sympathize. It was quite a disheartening thing for me to face as well. I'm really having to come to terms with this all over again in a way, as I had such good control for so long, regained so much mobility & sort of felt like the entire thing was 'behind me'. I sort of feel 'cast back into hell' this week. I'll get over it, but it reeks this week. I'm just glad you all are here.