Posted 1/8/2009 7:32 AM (GMT -7)
Darren, I actually have worked with children on the diet, when the neuro clinic I worked in at the time was doing a study. That diet is murder to follow, and we had 3 year-old children showing up with acne and really high cholesterol levels - like in the 400's. You're right, it can be very dangerous.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Posted 2/9/2009 8:29 PM (GMT -7)
Hi, I am new here yet have 3 years experience with the Ketogenic diet. If you monitor blood work on a regular basis and get good source of nutrients to supplement diet it can be quite amazing. Our daughter was put on the diet in 11/05 and it was like lifting a veil once she was in "ketosis". Her true personality emerged and we went from 100 seizures a day to just 10. Yes still daily seizures even with meds, yet a huge decrease in medication and a much happier child is what we saw from the diet. We just came off it this fall of 2009.
For kids with G-tubes for feeding; it is an amazing seizure tool that is administered easily. We went through our local children's hospital and the special Keto diet program. Our experience has been positive over all.
Kimberley/mom to Aurora Dawn, my beautiful daughter who will be 6 in March.
DX: Infantile Cerebral Palsy, unspecified Epilepsy: spastic partial onset /post myoclonic seizure disorder & CVI (cortical visual impairment)

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