New visitor - seeking advice re Temporal Lobe Seizures (simple partial)

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New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/4/2009 7:43 PM (GMT -7)   

Hello, this is my first post here, and I feel rather bad about making it because my problems will pale in significance to other people's, but I'm just hoping for some advice because I think I might be experiencing something similar to Temporal Lobe Seizure (simple partial)...

Without warning, a sudden feeling of 'not being inside of me' happens, as though I'm just outside the room, or when I look down at my body I totally feel as though I'm not in it. It's immediate.  Sounds distort (voices are quieter, but other sounds seem louder.  Certain things around the room can suddenly stand out larger than they really are, like a bookcase or something else irrelevant, almost as though the colours of the standing-out object are somehow more bold or stark than anything else in the room.  I then start to feel a rising nausea and I start feeling intense fear.  If it's early evening, I will then experience a strong deja vu which keeps repeating itself, or if at night in bed (these episodes nearly always happen in the evening or at night) I will part-hallucinate instead, with intense memories (like flashbacks to recent but unimportant happenings or a muddling of a recent TV program) that mix with my awakeness.

If it progresses further, my heart starts to race uncontrollably, sometimes my hands tingle, my face reddens, my hands go clammy and I begin to salivate profusely, so much that I cannot swallow enough times.  Panic then totally sets in because my fear is now directed towards the possibility that I shall be sick.  Sometimes it becomes hard to breathe (but not always).  If I reach this point, I'm usually sick once, then I get the shakes, at which point I go to bed and sleep.  Other times, I'm not sick at all, but make myself go to sleep in the hope that it passes.

I'm seeking help here because my reading on the net is confusing.  Some sites mix symptoms of simple and complex, some state symptoms such as flushing, nausea and profuse salivating would only happen in a complex (but then there would also be need for lack of consciousness which I certainly don't have), whilst others differentiate simply by whether the patient experiences reduced or total loss of consciousness (I don't - and as for loss of memory, I have appalling short-term memory anyway and probably wouldn't notice if this DID happen!).  The biggest confusion is that, whilst I seem to share many of the 'aura' symptoms I've read about, people's experience of aura seems to vary from seconds to a couple of minutes.  What I experience can last anything between 10 minutes to an hour beforehand, so I really don't know what is going on.  I don't want to risk seeking medical advice because I live in a country where I would be required to report any 'seizure' and that could mean instant loss of my driving licence, even though I have never lost conciousness in my life.

And so, to end my already-far-too-long post, can I ask if anyone else with TLS (simple partial) identifies with any of this?  You see: in a weird way, it might help if it transpires my 'fear' is actually just a symptom.  Maybe it will, anyway.  Thanks in advance for any replies.

Post Edited (Bullet) : 4/5/2009 8:36:18 PM (GMT-6)

New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/5/2009 7:49 PM (GMT -7)   
Maybe no-one does relate to the above after all. But I've just read something astonishing about TLS episodes at night:

“When the seizure occurs during sleep, the person will often become semi-conscious and act out a dream while engaging with the environment as normal, and objects and people usually appear normal or only slightly distorted, being able to communicate with them on an otherwise normal level. However, since the person is acting in a dream-like state, they will assimilate any hallucinations or delusions into their communication, often speaking to a hallucinatory person or speaking of events or thoughts normally pertaining to a dream or other hallucination.”

THIS I can totally identify with. Absolutely. It's happened many times to me - where everything in the room is all as it was in the dream, except it might be missing something bizarre that clearly was the dream in my part-wakefulness. I just thought it was some weird form of sleep-walking where I wasn't properly asleep (because I can see everything clearly), yet I'm not awake either because I seem to be acting out some sort of dream there were some things in the room that didn't belong there (a hallucination set in the real room).

I guess, even if no-one can help me with the above post, this new discovery I've made possibly suggests I've been having something very similar in many ways.

New Member

Date Joined Apr 2009
Total Posts : 4
   Posted 4/6/2009 7:07 AM (GMT -7)   
Hi! I am new to this site too but not new to seizures.
What your experiencing sounds like "auras." Everyone has different experiences. When I first started to notice something was wrong with me I was 16. I started hearing strange "swoshing" noises and also felt like I was outside of my body. This went on for about three or four months before I had a grand mal seizure. Not saying this will happen to you, but it might. Your body is obviously telling you something is wrong. I would go to your reg doctor and tell him. They will not pull your liscence unless they diagnose you or you have a grand least thats what happened to me. I have still have my liscence and I'm about to undergo brain surgery. Either way, your liscence is the least of your concerns right now.
What if there is something wrong and you end up having a seizure while you are driving?? Then what?

Regular Member

Date Joined Sep 2008
Total Posts : 27
   Posted 4/6/2009 8:56 AM (GMT -7)   
 Dear Bullet,
 I have had both simple and complex partial seizures for the last 30+ years and they don't
sound like simple partial seizures but everyones seizures are different. When I had simple partial seizures I would just stare off into space for a minute or two. The Aura that I had was interesting because I would smell alcohol before my seizures and when they started I would get this feeling in my stomach almost like tingling and I still get this with my complex partial seizures but when I have those my lips push in and out and sometimes my eyes blink. I also get these episodes at night. You might suggest to your doctor that you see a sleep specialist and see what .I should also mention that when I have these seizures that I will hear people talking to me but that I can't respond to them because everything kind of stops for me. I hope this helps you.

Falling apart in TX
New Member

Date Joined Apr 2009
Total Posts : 15
   Posted 4/21/2009 2:21 PM (GMT -7)   
OMG! This place is amazing. I am reading along and Bullett starts talking about feeling like s/he is out of their body! I had an epiphany in that moment. I have been having partial seizures for more than 20 years! I get very nauseated, my arms and hands burn and I sweat all over and I don't feel like I am still me, not exactly someone else just not me. I used to get so frightened when this would happen and then I learned to control my emotions and now my reaction is one of "removed calmness". I must tell my Neurologist about this. He has asked me several times if I have seizures and I always said no. I had a tennis ball size tumor removed from my right temporal area two years ago. I was told all brain damage done by the tumor is permanent.



New Member

Date Joined Apr 2009
Total Posts : 5
   Posted 4/29/2009 9:54 AM (GMT -7)   
You should probably go to your GP and see what they think. But at first reading, I would say, yeah, you need to see a neurologist, and have an EEG done to rule out seizures, or if they find they are seizures, what type. It's the most simple and direct route to finding out what's going on with you. And, as far as losing your license, I wouldnt be concerned with that right now; we tell patients not to drive until their levels are therapeutic, and pull licenses if patients are noncompliant with medications and/or are in an accident. If you do what your doctor tells you, you shouldnt have any worries!

New Member

Date Joined Apr 2009
Total Posts : 3
   Posted 4/29/2009 10:11 AM (GMT -7)   
I DID have seizure for more than 20 years but I got tired of asking for rides, being asked if I was ok, the paramedics at my house, and worse part living ina small town everyone hears the news. So I had a brain surgery and no seizures since. its domething to think about I was letting them control my life I was trying to work aound them because I had complex partial siezures, and grandma seizures everyday of my life I couldnt do anything.
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