Posted 8/29/2009 10:00 PM (GMT -6)
I am new here so here is a brief intro!
I am a University student, going into second year and I also have active epilepsy. I am on topamax and tegretol right now but we have been trying every kind of meds imaginable to try and get my seizures under control. I was 6 years seizure free but they came back last October. Initially they were just some innocent simple-partials and then now I have simple-partials, absence (i have these often, which is odd since I am an adult), complex-partial (rarely), tonic-clonic (often), and most recently atonics that often are immediately followed by a TC.
I am concerned for starting classes again in a few weeks. I barely made it through my summer terms but those were at night when my seizures are worse and I am hoping that my day classes will be better. I am wondering what others do when their epilepsy is active during University? It isn't like high school and elementary school when I am with the same people everyday. I am lucky with my TCs that I have strong auras before and often have enough time to leave the room and find a safe place, but with the atonics I have no warning and then they become TCs and I am stuck having a TC in a lecture hall of 200+ students. At this point my epilepsy is so out of control that this could easily happen on a weekly basis, if not more.
I want to stay in school for many reasons. I am just wondering how to be stay safe? What do others do?