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Regular Member

Date Joined Jun 2005
Total Posts : 481
   Posted 12/9/2009 5:42 PM (GMT -7)   
Hi everyone-smile
Well --if it isn't one;s another-confused
Starting to get--from time to time...strange "Pre-sleep" body jerks (arms..legs...fingers...trunk...even my jaw snapped one nite)----Once i'm asleep --I'm OK---!
I had two sleep studies done..nothing abnormal--!  Now..this is NOT....."Hypnic jerks"-!
I'm talking about ...also--strange mild... "electric shock" feelings thru my body--mad
I e-mailed my sleep specialist Dr----almost begging see me again--
He did call me up.....& suggested I call a well known neurologist....(head of Hospital Neurology Dept)--who specializes in epilepsy & seizures!    This Dr. said he had a patient recently with similar symptoms..& it could be "partial complex seizure"...!smhair     I did a search on this...("Partial Complex Seizure"..)----& it does NOT sound like what I get!
Anyway---realize this ONLY nite --right before falling off to sleep-!   It does NOT happen every nite...only when I'm feeling.."hyper"...or "wired"---eyes
He gave me the Drs---phone#----& I called & made....appt.....Dec. 21--
I'll be getting an EEG...THEN...Dr. will look at it---& talk w me!  MY question--like an EKG..(for the heart)--what if the EEG....shows everything.."normal"......BECAUSE it only happens before...sleep!
Can the neurologist STILL tell--from my EEG...?  The tech'll last ONE HOUR!confused
I'm HOPING I hear from others---who get these "pre sleep".....arm...leg..body...Jaw...jerks!    And..NO----it's NOT the "falling feeling"--Everyone gets that!    Please---HOPING someone....or more gets back..& helps me understand----
SOooo--IF you have had anything like this...OR let me know HOW the neurologist can READ the EEG.......when I'm NOT feeling these things-!   Thanks---I'll be waiting----for some responses--God bless--Robert:-) .

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 12/11/2009 10:00 PM (GMT -7)   
You might ask your doctor about myoclonus. They are  jerks and and sudden movements that happen just before you fall asleep or just when you wake up. You can have mycolonic jerks and odd movements without having epilepsy. I do not have epilepsy, but I do suffer from myoclonus and myoclonic jrcks. They usually only occur in the evening. If they get really bad, my neurologist has prescribed a low dose of klonopin. That usually takes care of problematic attacks.

Good luck and talk to your neurologist about this. It is fairly common.

Stella Marie

 Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair


Regular Member

Date Joined Jun 2005
Total Posts : 481
   Posted 12/22/2009 7:40 PM (GMT -7)   

Hello all....--Got my EEG today...& YES....Stella Marie--you were 100% correct!yeah

I saw one of the top "neuro-epilipsy" the nation!  (Has taught at various top notch med schools)--& written in Neurological journals....& he read my EEG...& said it was.."perfectly normal"!smilewinkgrin What I have is merely...'pre-sleep myoclonus"-!

The EEG was not too bad....took the tech...(who was very nice)--awhile to get the more than...30 leads onto my head!   And those strobe lights....whew!  Really bright!shocked And..I waited...for about 45 see the Neuro--!   Soo, he said my EEG...was "normal"..!

I do not have epilepsy...or seizures...but merely "myoclonus"-!   Thank God---& "good call"...Stella Marie!wink Wishing everyone here a very Happy holiday--Merry Christmas.....& a happy...HEALTHY...New Year--regards---Robert





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