behavior problems and epilepsy

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Regular Member

Date Joined Dec 2004
Total Posts : 45
   Posted 12/21/2004 11:21 AM (GMT -7)   
Hi all,

I am just wondering how many of you with temporal lobe seizures of any kind, have behavior problems or sudden mood cahnges for no reason, that are not in your control??

I have those, and was told it was common with the type of TLE I have, and when I have these sudden mood swings or changes, my mom tells me to control myself, and I say I can't, and she says yes, you can.

I CAN'T GUYS. My epi told me is was all intertwinded with the epilepsy, and was out of my control when it occured. He told me it was the typical behavior patterns and characteristics of only TLE. They called it the TLE personality. My mom said I am not the same happy go lucky kid I was when I was a child, but this hadn't caused the damage to me, then, that it has now.

Can certain forms of epilepsy really cause a personality change in comeone that is out of their control. Because when I am not ictal I am fine.

See, I have abnormal on-going continous electrical firing with intermittent spiking even when I am not seizing, so this type of behavior just occurs for no reason and doesn't match what is going on around me.

I don't know if that makes any sense, but I have trouble explaining things.

31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.

Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.

Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.

I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.

I failed 7 other drugs.

I take Depakote-1000 mgs and Neurontin--3600 mgs


Veteran Member

Date Joined Jul 2003
Total Posts : 585
   Posted 12/21/2004 3:04 PM (GMT -7)   
I have read things about the TLE personality as well as Frontal Lobe behaviors since we have those living in my home.

Is there a time when your mom goes with you to the neuro? I just wonder if she would understand or believe more if she heard this from him?

It is one of those hard things to get a handle on > You do not want to make it sound like you are making excuses, but there sure are real physical things that increase these behaviors. We have had to try and balance all that. One thing I have tried to teach my son is that others and the world out there will not understand if a med or the seizures make him difficult to be near. He needs to work at realizing when he feels that out of control or mood swings etc and try to remove himself from the situation some....

Hang in there Nancy. I know it is tough and you are an adult having to live at home again, not easy at all!
Hoping you can work things out!

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 12/21/2004 3:21 PM (GMT -7)   

Hey Nancy,

I get terrible mood swings caused by the meds. It's too bad that everybody around me doesn't understand. We'll have to spread awareness. My own family is worried about my mood swings and that i will ruin Christmas in front of the relatives.


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

Veteran Member

Date Joined Jul 2003
Total Posts : 585
   Posted 12/21/2004 4:10 PM (GMT -7)   
((Randy)) and ((Nancy))

I am sorry family has placed that extra pressure on you.....It is not you that would RUIN it, it would be how they react or take what happens maybe....

Like Randy said, keep spreading the awareness. So frustrating that you cannot help or know WHEN these swings will hit and you cannot stop them once they start either.....

Hoping things go ok!
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