Posted 12/21/2004 11:21 AM (GMT -7)
I am just wondering how many of you with temporal lobe seizures of any kind, have behavior problems or sudden mood cahnges for no reason, that are not in your control??
I have those, and was told it was common with the type of TLE I have, and when I have these sudden mood swings or changes, my mom tells me to control myself, and I say I can't, and she says yes, you can.
I CAN'T GUYS. My epi told me is was all intertwinded with the epilepsy, and was out of my control when it occured. He told me it was the typical behavior patterns and characteristics of only TLE. They called it the TLE personality. My mom said I am not the same happy go lucky kid I was when I was a child, but this hadn't caused the damage to me, then, that it has now.
Can certain forms of epilepsy really cause a personality change in comeone that is out of their control. Because when I am not ictal I am fine.
See, I have abnormal on-going continous electrical firing with intermittent spiking even when I am not seizing, so this type of behavior just occurs for no reason and doesn't match what is going on around me.
I don't know if that makes any sense, but I have trouble explaining things.
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.
Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.
Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.
I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.
I failed 7 other drugs.
I take Depakote-1000 mgs and Neurontin--3600 mgs
--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!