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Jean Ann
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Date Joined Dec 2004
Total Posts : 1
   Posted 12/27/2004 8:38 PM (GMT -7)   
Hello everyone. This is my first post and I look forward to hearing from the REAL experts, you! My 19 year old son was diagnosed with epilepsy in June. His first seizure (of 15) was June 8, and the last 3 on Oct. 5. He had medically induced seizures in our local EMU over Thanksgiving. We had our post-hospital follow up visit today. He was hoping to get the doctor's approval to drive. Since he already had his license when all of this started, and since we were never told to notify the Dept. of Motor Vehicles, we didn't. We thought that after waiting the required 3 months we just needed the doctor's ok. But today we were told that since Arizona is a "self reporting" state, we MUST notify the DMV. Tyler has been very conscientious about not driving, but I hate the thought of telling the DMV and knowing that "big brother" will forever be watching. I also wonder if they will notify the insurance company and his rates will go sky high. We're not trying to do anything illegal, but I don't like the idea of the govt. knowing more than they have to. What are your experiences here? It looks like we have no choice but to notify the DMV, but does that mean our insurance company will find out too? How do they "keep tabs" on those with epilepsy? Any information would be appreciated.  Jean Ann

Veteran Member

Date Joined Jul 2003
Total Posts : 585
   Posted 12/27/2004 9:13 PM (GMT -7)   
I am so sorry Jean ann. It is so tough for anyone who has had a license to loose that freedom....I have two teens with epilepsy. One is 15 and was just diagnosed 6 months ago. We have not faced this yet, but it is ahead....

You can look on the epilepsy foundation websites. They have info on the driving laws by state. I am not sure if DMV tells insurance or how that works. You need to find out what penalty there might be if you do not report it, too.

Hang in there....

Veteran Member

Date Joined Jul 2003
Total Posts : 585
   Posted 12/27/2004 9:14 PM (GMT -7)

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 12/28/2004 9:35 PM (GMT -7)   

Jean Ann,

I've had EP since 1979, only had ONE (1) grande-mal seizure since then, all my EEG's showed seizure activity in my lower left tempral lobe.
In in Dec.2002, I pulled in to a Wal-Mart parkinglot and just as I pulled in to a parking spot, Someone must have been looking out for me because I just came off the highway.  I must have passed out because all I can remember is the front bumper of my car (brand new) was "kissing" the bumper of the car in front of me, my car was still in drive with the motor still running. The lady in the car in front of me just happened to be a nurse and she opened my door to see that I was OK and then turned off the engine. She told me to stay put as she had called an ambulance after she noticed that for a moment I couldn't speak and she noticed my medic alert bracelet. I noticed that I was also foaming at the mouth.
Since the police were called and a report was filed, I had my licence suspended for an indefinate length of time.
Now I have to get my blood checked once a week so it can be closely monitored before I can get it back. I have to go seizure free for 2 years (controlled by medication).
It's like having my freedom taken away from me.
Do you know how humiliating that is especially when you've been driving your whole adult life?
That just goes to show you that it stays with you your whole life but can stay dormant in your system and cad hit you at any time when you leaste expect it.
This is one main reason why you should stay on your meds. even if you think it's gone.
I'm from Ontario, Canada, Our transpotation laws may differ from yours.
I've had EP since 1979 controlled by medication so reported at that time to the "Ministry of Transportation" that I was controlled by medication, no questions asked and I didn't lose my licence.
I must have slipped through the system because in ALL cases you must go seizure free for 2 years even if controlled by meds.
I drove without a problem until Dec/02 during an incident in a parking lot(I just came off the highway).
Now my blood levels are being checked each week but the Ministry of Transport has tightened up the rules in this area in an attempt to reduce traffic accidents so that is making it more difficult to get it back. But if I do get it back (which I don't think) I still won't drive and risk the lives of others. I think that is the more resposible way to handle it and set an example for others.
It's just like driving drunk-you're taking a major risk.
At first I felt that some of my freedom was taken away but I've gone almost 2 years without it and I'm starting to accept it a little easier.

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

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