I agree with Kayakmom about a second, third or even an 4th opinion about your seizures. Epilepsy, if you do have it, is NOTHING to play games with.
They need to get their acts together, and quit horsing around with this.
They need to get an EEG ordered, Sleep-deprived, or even a 48 hour office stay with video telemetry.
The most excellent form of diagnoses is the VEEG for longer than 5 days.
If your seizures are truly epileptic in nature it will come across the monitor with electrical activity abnormalities. Spikes, waves, spike-and-waves, sharp spikes, sharp waves, slowing over a localized area, and high voltage generalized activity are all something that shouldn't be there.
Each seizure usually has its own EEG pattern, characteristics, and symptomology. NO two seizures are alike.
NES DOES NOT produce abnormal electrical activity during a "so-called" seizure. Sometimes, and I mean sometimes, a person can have a Simple Partial seizure that originates from deep within the lateral portion of the Temporal lobe(s). It it so deep that normal scalp electrodes can't get it. But VEEG does.
They usually try to match up what your body is physically doing during the seizure and the electrophysiology of the EEG, and if it is a for real seizure then there would be both clinical manifestations and abnormal electrical activity occuring together at the same time.
Seizures can't tell time, or go in cycles at the same time each day. That, or your EEG may have been what tipped him off.
I had spiking, and slow waves during 2 EEGs, and high voltage garbage that resembled a generlized seizure in the other 2.
There was no doubt about mine.
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.
Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.
Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.
I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.
I failed 7 other drugs.
I take Depakote-1000 mgs and Neurontin--3600 mgs
--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!