Pls excuse my english, I'm european.
I think you are so right! I have allways been low on sodium, even before epilepsy (since 5yrs), but did'nt know until now. I checked back. Could be Trileptal made it worse, but tried to reduce dose without any noticable effect.
My sodium issue is now so severe I'm in hospital. My body will not contain sodium. If I add sodium orally I get severe stommach pain, need to have it intranevously. Also suffer with diarrhea when sodium is too low. I'm stuck in hospital and they can't give a diagnosis.
Talked to my distant cousin on FB yesterday, her daugther had severe epilepsy since birth, and guess what - diarrhea. Twenty years later a doctor found out her sodium is too low at all times. Both epilepsy and diarrhea is gone using a medication called GEM (in Europe). Can't wait to talk to the doctor and try it out
But why do I have this sodium condition? I have pigmentation lines in handpalms and copper colored urine. I think it could be kidneys, the doctors do not agree (because I suggested it self?), their looking for all other reasons. Also have kidney diseases in family. Anyone?