I'm new to the site. Felt it would be nice to talk to others that are having the same kind of issues.
4 yrs ago this is how my life was turned up side down:
collapsed at work suddenly
4 grad mal seizures in a row
taken by ambulance to hosp.
admitted for 1 week and saw about 4 different types of dr's trying to figure what was going on
All test results were normal and released
I'm sure you've all had the same experience with the dartboard of dx (where ever it sticks it must fit) their guesses ranged from, hypoglycemia to anxiety attacks to syncope, blah,blah,blah
From Aug to Oct I had 15 seizures
I kept a journal of the events thinking that it might show me a pattern
One day my husband and I said "this is it, we'll do whatever it takes to get answers". I insisted on seeing my PCP with thoughts of going to Cleveland Clinic and while sitting in his waiting room fell out in a grand mal. He said "she's having seizures" my husband couldn't believe it. I was referred to a neuro who is the greatest!
I was dx with catamenial seizures related to my menstrual cycle. I've been on Lamictal ever since. It took me 2yrs to get controlled and felt I was clear when one day I fell out at work and couldn't figure out why. Later my neuro said it could be related to a bladder infection that interferes with the absorption of the Lamictal.
This last week has been like watching an old movie; I've had 5 seizures this week ranging from multiples to single seizure episodes. I tested for a bladder infection, it was normal, although my Lamictal level has dropped from 10 to 4 without reason.
Last night I had multiple seizures while driving with my husband. Since they were in a car I was confined and jammed my body alot between the seat and dashboard. I always have a terrible headache after and take migraine med. to help. Scared my husband when about 4 hrs into my recovery I started talking like I was mentally disconnected. Have any of you experienced this kind of disconnected talk? Another thing I've noticed lately is that I crave sugar when I recover. I'm really rung out today, mentally slow, sleepy and extremely sore.