... So I posted a month or two ago that I was trying to start an epilepsy support group on my very small college campus. The first meeting was a flop- no one showed, except myself and the school nurse that was helping me. Tonight I tried for a second time, expecting to be let down once again- but hah! One other person showed up, I guess that's better than no one, so it was me, this guy, and the nurse. It was interesting brainstorming ideas of what we wanted to happen with the group and how similar some of our experiences with epilepsy were the same. One big difference is that the man's seizures are hereditry from his father and they've been under control for a while, me on the other hand- no idea what causes them, and I've only been under control for the past 8 months (knock on wood!). So now I have all this added pressure to make this support group work. Just after posting how stressful life has been, I add something else to my plate! I have to set-up a speaker to come talk to the campus, I'll probably ask my neurologist or another one from the hospital i go to- i've got my hook ups (which is not the best thing i guess, o well!). I'm hoping to get the nursing students, science majors, and psychology students interested in the talk as well so there will actually be people that attend it! The bad thing is I have well, about a month to set it up with midterms happening right now and spring break coming soon! too much stress! well, i guess this post was to share good news that someone showed up but also I guess I'm seeking for some advice about how to manage a support group. anyone out there ever started and ran a support group before? any good advice? because i need any i can get! thanks and I hope everyone is having a good week- i know mine is a lot better than last week!
"Carry on. It is not easy. But it is what we have to do- only we do not have to do it alone."
First seizure: 1993
Officially diagnosed: 1999
Type: Simple Partial to Secondary Generalized Tonic-Clonic Seizures
Cause: Unkown, all tests are negative for abnormalities...
Meds: 750mg Keppra 2xday