Posted 7/22/2011 12:27 PM (GMT -7)
So, my medical history is long but I'll try toshorten it up for you. I had a brain tumor when I was four (it was a craniopharyngioma). Since then I’ve been on full hormone replacement because my pituitary gland died during that procedure. Anyway, It came back twice as a cyst in the same part of my brain. Those cysts where treated using radioactive phosphorus and went away on their own. However I had my first seizure in 1999 one random morning as I was getting ready to go to school. I had an EEG done and my neurologist put me on Depakote and I gained about 50 to 60 pounds because of the side effects. then in 2000 I had a brain tumor wrap itself around my optic nerve and partially blinded me in my right eye. When I went to see my Neurologist and he heard about the tumor he did another EEG and I had normal results (so he took me off the Depakote). Anyway, I had another tumor in 2001 in the same place near my optic nerve which made me completely blind in my right eye. Anyway, since then I have been seeing my Neuro-ophthalmologist and getting MRI’s every year (so I see one Dr. every 6 months) just because the last tumor came up really fast and did some damage. Anyway, at the beginning of the year, I had another grand mal seizure out of the blue one morning. It was just like my last one where I afterword’s I had no Idea what had happened, and I didn’t even remember getting out of bed that morning. So I got rushed to the hospital and put in the Neuroscience ICU for the night and got an MRI in the process. The reason for this is that my step-father is a Neurosurgeon (the one who did my first operations) and he thought I might have another tumor so he wanted me ready to go into surgery if I did. Anyway, the MRI was clean as a whistle with no tumors, cysts, or anything else out of the usual (except for a dilated artery that I’ve had since my very first surgery). So now I see a new Neurologist who put me on Keppra 750MG twice a day because my latest EEG I had showed “blips” on the right side of my brain.
So, now that that's out of the, I can get to what I wanted to talk about to start out with. I HATE my Keppra with a passion, I still take it and what not, but the side effects are killing me (figuratively). I just finished my last year of college and I know I could have done better the last semester if it weren’t for the Keppra side effects. I just feel like I’m living in a dream, I don’t sleep well at night, and, after being on it for over 7 months, I still get dizzy and trip all the time. To top it off, I really don’t think I need the meds to start out with, I don’t and have never had any electric shock sensations, confusion, or any other side effects of Epilepsy. The only thing that I can think of that may be pertinent is that right after I had my Lap Band surgery in 2010 I feel lightheaded and dizzy when I stand up too quickly, but I just attributed that I to having lower blood sugar / lower blood pressure from not eating all the junk I used to. Personally, I kinda wish that I did have a small tumor that caused it so that they could go in there and cut it out so I wouldn’t have to take Keppra anymore… Anyway, I would love any suggestions as to what you think I should do; I already plan to talk to my neurologist about switching to Keppra XR so I won’t have to take it at night (because I struggle with remembering to take that pill every night 12 hours from when I took it in the morning). Thanks in advance,