Posted 3/24/2005 4:01 AM (GMT -7)
thank you jennifer.... my name is debra and i have the little girl that has either the ends of lks or csws. that was a great website you sent sheryl and she sent it to me. once again thank you. 
Posted 3/24/2005 11:15 AM (GMT -7)
hey jennifer,
well where do i began...lyric started reading at the tender age of 13 months old and talked then like a 3 year old. I knew she was smart but to what degree i didnt know. i would wake in the morning to see a new word written on the fridge with those magnetic letters and would nearly pass out.  As time went on she loved to do most anything with art and music. perfect eye contact at a young age, i breastfed her she stared at me constantly. No autistic behaviors to speak of until around 2 when she started saying what i would say when she wanted something..ex. want juice instead of i want juice. her reading never stopped and unlike hyperlexia, she comprehends everthing. she never slept at night without waking and crying and this went on until she was 4 and 1/2.  finally she slept through the night only with the tv on nasa or static.  now she sleeps without it. her problems really started happening at age 3 when she started replacing words with words that didnt go there and started really relying on written directions or statements telling her please stop crying... written she would stop, saying it she would not know to.  eye contact started slipping and she would act as though she didnt hear you.  social behaviors became hard for her even though she wanted friends so badly. she has been i therapy for 2 years a;nd it has helped so much. Her original dx was pddnos and would later turn into aspergers syndrome.
I wanted to see a ped nurologist and he was from augusta childrens medical colllege.  the best in georgia. he said she seemed to have aspergers but wanted to be sure it was not lks. we did the mri and a .o5 hole showed in the middle of no where in her brain.  and the eeg was an overnight and should slow waves on the monitor to the point it took my breath away at times.  the doctor contacted me and said she was on the tail end of lks and we would look to see if it was csws- she had continuous wave spiking in slow sleep. the doctor said he wanted to do more testing from a neurophycologist for cognitive and so forth. then he said she would probably be put on steroids and depakote to see if this helps her. He wants to see if the abnormal eeg is the cause of her symptoms. i talked to him a coulple days ago and he said not to worry about the siezures they are not clinical a;nd we would take it a step at a time basically. i cant help but worry.....thanks again...

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