I'm so sorry for the awful time your son and you are going through.
It sounds to me that your son needs additional help, possibly through some sort of pediatric special needs clinic. I encourage you to exhaust all social services available, and if you have good insurance, see what they cover and maximize his ADD treatment, (in addition to the epilepsy). There are often children's centres that offer counselling/education for child and parent, social activities for the child, as well as medical advice.
I think counselling especially would be beneficial for him. He is going through a hard time in his life.
If you're a praying person, call up some prayer lines and get him on a regular prayer list.
Also, is he seeing a pediatric who specializes in epilepsy? You can maybe try to find a place that specializes in kids and epilepsy as well, like at a reputable children's hospital.
A close relative of mine was diagnosed with epilepsy, and later with some mental health issues, and she did not have a very supportive family. Obviously, having a loving family makes all the difference.
I think it's wonderful that you're reaching out. Being a loving and supportive anchor and advocate for your son could be what helps him the most.
Hugs to you both!
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.
Post Edited (Roni) : 9/27/2011 8:03:02 PM (GMT-6)