ttwofour- I was on Dilantin for 8 years and was recently taken off it.
As far as the stomach pain problem - let me tell you what happened to me. I never really had a problem with eating before, just occasional indigestion, something I took tums or an occasional rolaids... but I was started on Dilantin and about a year later I had severe pain that eventually led me to have my gallbladder removed. The surgeon said I was having gallbladder attacks. When it was removed, they didn't find stones. I suspected maybe it wasn't my gallbladder that was causing the pain. But anyway, the pain seemed to go away and I thought nothing of it.
Then several months later, the pain returned again, worse than ever. This time, I had the pain with a burning heartburn sensation. This led to my seeing a gastroenterologist and eventually getting a scope down my throat. He said I had a lot of acid in my stomach that was coming up into my esophagus and that was causing the burning heartburn sensation. He prescribed Reglan to help my stomach to "empty" all that acid which helped a lot but also triggered my seizures!
I struggled with the pain for about 4 years before I just got used to it...
JayJ- I too was on the Dilantin, Lamictal, Zonegran combo (among others) and it wasn't until I upped my Zonegran to 300gms/d that I had terrific pounding headaches every day. I still have headaches, even with reducing the dose, but if it's reduced any more I'm afraid the complex partials will be triggered to come back. I have simple partials now... what a life!
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d