I have been trying to help my best friend with her son's seizures, she has several children and anxiety probs and it's difficult for her to deal with issues this big.
Her son was diagnosed with epileptic seizures, tho he doesn't have epilepsy. He has some type of cysts in his frontal lobe due to chromosomal defect. His mother doesn't remember the actual name they called it and I couldn't find any info on it.
They are telling her that the seizures will be fatal to him if they cannot get them under control. They started eight months ago with occasional petit mals, then last month they progressed to grand mals while on seizure meds. The first one lasted 15 minutes and an ambulance to him to ER, where they promptly just sent him back home. Later that day he had a grand mal that lasted 45 minutes, his parents decided to not call the ambulance again. I saw the child (he's eight by the way) two hours after the last grand mal and he was extremely altered, large delay in responding to you, couldn't walk, didn't look "there" at all. He still has the petit mals, but hasn't had another grand mal.
His doc has him on one med, can't remember the name at all right now, but he still has seizures while on this. If the seizures are that dangerous to him, shouldn't he be tried on different meds to stop them?
My uncle was diagnosed with epilepsy as a child and it now in his sixties without any large issues. He takes meds, but drives even though he shouldn't. I've never heard him or my family speak of his seizures being dangerous to him. So I'm wondering what makes seizures dangerous, vs. non dangerous and has anyone ever heard of my godsons condition?
thanks for listening