Posted 5/22/2013 10:59 PM (GMT -6)
My girl with autism has seizures. At first the doctors thought its just psuedo seizures cuz nothing came back on the eegs and open MRI and when they did a 3 day veeg, she only lasted less then a day and everything came back normal yet she has seizures at any time or moment even if she lays on the couch. She has them in her sleep, I've woken her up, a combination of drool and blood on the pillow, bed drenched in sweat, and she barely able to move, achey and exhausted. I've watched her just drop and fall into a seizure, body straight like an arrow, stiff, arms flailing, sometimes she shakes, goes in and out of consciousness, etc out of nowhere. She has staring spells, drop spells, random jerks/twitching, every weird kind you can think of. I even videotaped a over 45 minute seizure and posted it on youtube to help show the doctor. During the video EEG she had a couple drop seizures that concerned the nurses but the one doctor said he thought it was related to her autism and it didn't show up on EEG. It's like a huge runaround with tons of different seizure meds that none seemed to help and literally every day she has some kind of seizure for no reason. Her neuro right now says its possible to not detect anything on EEG cuz the seizures are too deep within the brain. Does what I'm saying sound like psuedo seizures? Or epileptic? When I say they happen literally no reason why it's like a *** moment. One day she was laying on the couch awake stimming happily with her rubber dinosaur she likes to bite and boom just stiffs up, arms jerk, drools and I got to run over and catch her before she falls off the couch or hits her head. It's ridiculous. Any ideas?