I have what is Dx'ed as Psychogentic Non-epileptic seizures, with possible mixed epileptic episodes. Its soo hard and so confusing.
I say go to a Epilepsy Specialist, have a week long video EEG, and since you showed abnormality its safest to stay on the Keppra and get another option or stick with the one who originally dx'ed.
BUT being non-ep if that is in fact PROVEN true is a good thing, meaning you won't have to always be on or increase meds, little chance of brain damage, etc. There is something called conversion disorder and Psychogenic Non-epileptic seizures, but they don't know on an EEG (unless its mixed or idiopathic seizures)
I always say follow your gut, and not all dr's know everything.
Did they do proper labs to test like lactic levels, etc?
Don't just settle on the "stress" dx as they tend to do that way too often without enough proof or if you feel there was an increase in stress. The brain can do amazing, crazy things when stressed sometimes...
and i know how hard not driving is, I just got mine back in Sept.
and people can be very cruel with the "faking" accusations. whatever you do stand up for her and her for herself on not letting them accuse faking. Even most neurologist will say true PNES or Pseudo seizures are NOT FAKE.
I just experience this last week, after my first seizure in a year. Its usually the Nurses, people with lack of education, but even some drs. I was down right abused at times from people trying to prove i was faking.
Funny you can't fake no pain response, low O2 stats, fast heart rate, muscles so rigid it cause shoulders dis
location, loss of bladder control, vomiting etc.(does she have any of those symptoms?)
tgarrison, stay strong and fight for your daughter. Its a hard road but we can do this.
I also found Frankincense essential oil to REALLY help my seizures. Google it.
Take care and I wish I had better words of wisdom. (I'm unsure if I've posted on this thread before or not)
Dx's:CP, Depression/anxiety, Non-Epileptic Seizures, repeat Rt shoulder dis
locations/surgeriesx3, Nerve damage after IV infiltration wi/ chemical burn in left arm; endo & ovarian cyst; chronic Lyme...I could go on but will spare you all
Meds: pain meds, nerve meds, GI meds, holistic things, etc.
doTERRA essential oils-Frankinsense, Lavender, Balance,peppermint, Clary sage, LOVE my OILS!
Post Edited (AngMichelle) : 12/12/2014 2:27:37 AM (GMT-7)