about my headaches- I had them before the surgery, and I continue to have them after the surgery, but they are probably due to two different things. I have headaches like I used to have before the surgery - I blame my meds. I wake up every day with a pounding headache in the back of my head ... The other kind of headache is from the surgery - the left side of my head hurts around the incision - I think in the areas where the titanium screws and little plates are holding the bone together. It sounds worse than what it is... mostly it's annoying compared to the other headache.
I went to Boston and wouldn't hesitate to go to the same neurosurgeon again in a heartbeat. He does 1-2 surgeries/week like mine, so I was sure he was the "right" doctor. Although I live in Colorado now, I used to live close to the Boston area, and I called my old neurologist for the referral, as I wanted to return to Boston. I did a lot of research as you are doing, and you really do have to go to an Epilepsy Center that has a lot of experience. Some important questions to ask the surgeon - how many surgeries/year, complications (and what kind), length of hospital stay, kind of incision, what is the follow-up care once released from hospital, how long to stay on meds after the surgery.
I talked to several people that had the same surgery I did before I had it done, and that really, really helped a lot.
Feel free to email me! firstname.lastname@example.org
complex partial seizures since 22