Seizure disorder and chronic muscle pain

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Date Joined Apr 2014
Total Posts : 66
   Posted 5/9/2014 9:55 AM (GMT -7)   
Hi everyone. I am 27 years old I have a history of seizure activity in my right temporal lobe. For several years it went undiagnosed as a mental illness called depersonalization disorder with panic attacks. Although I never went unconscious and part of me was always there knowing the day time and my name I feel strangely detached. I could look at my mom and feel it wasn't my mom or it was just a picture/body there with no meaning. Also with my episodes I would feel extreme sense of fear. since I was diagnosed with the right temporal epilepsy no medication I have tried has helped me.

Now I have experienced an increase in my episodes where it happens at night I wake up disoriented and scream and throw things or bang the floor then I go back to sleep. I get them probably between 10-30 times throughout a 24 hour period where I feel detached and strange.

A new symptoms has also emerged. I have chronic muscle pain that is pretty disabling all over my body. My neck, upper back and hips. The muscles are knotted and im very stiff all the time.

My recent 3 day eeg showed sharp wave seizure activity only this neurologist wouldn't explain much to me I asked him if it was my temporal lobe again and he said it was generalized.

I cant help but wonder if my muscle pain and seizures are connected. I wonder if there is some sort of auto immune disease attacking me ? my seizures are not the normal kind its not like I stare in space or anything

Regular Member

Date Joined Jan 2014
Total Posts : 394
   Posted 5/14/2014 9:11 PM (GMT -7)   
HI. I too have Temporal Lobe Epilepsy (TLE) and was misdiagnosed for more than 15 years. My seizures are Deja Vu, memory disruption, and some sadness with no loss of consciousness. I take Phenytoin for my seizures, in my case it's very effective.

Symptoms and behaviors common in Temporal Lobe Epilepsy.

If you're not familiar with the term Ictal, it pertains to the actual seizure. Post-ictal is after the seizure, and Inter-ictal is between seizures. The link below describes pain, confined to a specific area of the body, as the manifestation of the patient's active seizure (Ictal Phase). It appears that pain can, in specific circumstances, be a manifestation of seizures.
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