New to the epilepsy forum

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2011
Total Posts : 89
   Posted 5/16/2014 4:53 AM (GMT -7)   
I was recently sent to a neurologist for uncontrollable muscle spasms. I had a Normal MRI, Blood work and yesterday I had an EEG.
The tech did two tests. The strobe light and the HVT. On the stobe light my eyes went a bit crazy on the lowest setting. During the 3min HVT I didn't complete it before my body shut down. I didn't necessarily pass out but I did sink into the chair and felt like i went to sleep.
I was wondering if this is normal or is this a sign of some kind of seizure?
Any thoughts are greatly appreciated.

Major Depressive Disorder, PTSD, Fibromyalgia, SI Joint Disorder, Peripheral Neuropathy, Bursitis, Sciatica

Regular Member

Date Joined Jan 2014
Total Posts : 394
   Posted 5/16/2014 7:36 AM (GMT -7)   

I have Temporal Lobe Epilepsy that went undiagnosed for over 15 years. During that time, I had several EEGs, none showed anything significant. Some of those tests were sleep deprived, I remember the strobe and hyperventilation phases well. The strobe lights would cause me to see strange shapes (eyes closed of course) but never elicited a seizure potential. Hyperventilation, I've always had trouble with that, even at the doctors office when they're listening to the lungs. I'm not sure it's related to seizures either, I've never been told so during the EEGs. My symptoms eventually worsened, and my seizures were documented by a 24 hour EEG that I wore, though, ironically, by that time, even an in office EEG would have confirmed them.

Looking online and limiting the symptoms to just neurological, just for this discussion, hyperventilation can cause the following:

Dizziness, unsteadiness or instability, faint feelings (rarely actual fainting), visual disturbance (occasional blackouts or tunnel vision), headache (often migrainous), parethesiae (i.e., numbness, deadness, uselessness, heaviness, pins and needles, burning, limb feeling out of proportion or "don’t belong"), commonly of hands, feet, or face, sometimes of scalp or whole body, intolerance of light or noise, large pupils (and more, I'm sure)

Hope this helps.

Regular Member

Date Joined Oct 2011
Total Posts : 89
   Posted 5/16/2014 8:32 AM (GMT -7)   
Thank you Jungrulz,
That does help. I guess it was a blackout... Couldn't find the word. But yes all those symptoms happened just before I went into a "trance" feeling. My follow-up with the Dr is Wednesday so I'll have to wait. I'm the type to Google things to find my problem. Haha
Thanks again
Diagnosed with: Major Depressive Disorder, Chronic Fatigue, Fibromyalgia, Interstitial cystitis, IBS, Degenerative Disc Disease, SI Joint Disorder, Sciatic nerve pain
BUT...I'm trudging along.

Regular Member

Date Joined May 2014
Total Posts : 40
   Posted 6/1/2014 5:23 AM (GMT -7)   
Izzy5 I don't know if this helps or not but when I have a grand-mal seizure I black out and it feels like I went to sleep, but come to find out I had a seizure. I was jerking uncontrollably, I lost consciousness, stopped breathing a turn blue. It lasts 3 minutes or less. It's scarier for the observer. But that's the way my husband describes it. When I come out of it I feel like I slept and my muscles are sore and my head hurts. Even if it's not a grand-mal seizure with a petit-mal seizure you just stare off into space for a few minutes and maybe your hand or something will twitch. To the observer you look like you're not paying attention to them or ignoring them, but actually it's a form of a seizure and you feel like you just blacked out and heard nothing anyone said around you and you are all confused. Hope this helps. Seizures can be hard to diagnose sometime. I had my first one at 13 they misdiagnosed it as a one time seizure and then at 16 I had a grand-mal seizure and it was here to stay. I'm almost 26 now. I hope this helps you. Best of luck to you!
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 6:50 PM (GMT -7)
There are a total of 2,904,616 posts in 318,774 threads.
View Active Threads

Who's Online
This forum has 158154 registered members. Please welcome our newest member, Richie222.
366 Guest(s), 17 Registered Member(s) are currently online.  Details
Erichardson234, Richie222, Dahlias, hammer8, Hoagie, ArtAngel, rafaeltoral, Skypilot56, NiceCupOfTea, Raleighgirlie, Gutsycal, three 5's and a jack, momem3, Glc100, Tall Allen, straydog, Charmin shredder