the worst neurolgist ever :(

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fnfiacco
Regular Member


Date Joined Apr 2014
Total Posts : 66
   Posted 5/19/2014 6:27 PM (GMT -7)   
I am beyond frustrated right now. Has anyone else ever had a problem with their neurologist?? Let me explain what happened. I went in for my bizarre symptoms and had a 3 day eeg which came back abnormal although I never had a spell during the video monitoring. This neurologist ordered a bunch of tests and also because I have chronic muscle pain during my appointment he came with an injection but NEVER TOLD ME he had ordered a series of balance tests, why it was important or why I was having it or told me he was going to give me an injection for my back pain. I just went along with it the first time only. After my 3 day eeg I had a follow-up and before giving me the results he tried to inject me again and I declined and he tried to push me to do it. Finally he tells me about my EEg but gave me no explanation just that he would have me on keppra. I tried to ask questions about what kind of epilepsy I had and he didn't want to answer any questions even glared at me.

I was so frustrated by him not bothering to tell me what tests he was ordering and why and explain anything to me so I decided to see the girl neurologist there are only 2 in that building. So 2 weeks later I schedule a second opinion with the same place but the other doctor. My appointment was at 3:15 I waited an hour for her exactly 4:15 she came to see me. While I was waiting I could hear her asking about me to the other neurologist and he was calling me difficult and basically bad mouthing me. I was shocked. When she finally came an hour later she crossed her arms in front of her with sort of an attitude and said "so you have some questions?" I tried to explain everything and she basically told me they cant help me or "experiment" yes she said the word experiment on me with medication because im pregnant. Then after the 10 minute conversation I finally realized she never bothered to get or look at the EEG results from the male neuro I was seeing at the same office. And she basically acted like I was a hypo condriac told me my back hurt because of a disc problem ( which was ruled out a long time ago I don't have a disc problem) and told me that I needed a witness to tell her about my spells because I didn't know or shouldn't know what was happening if I was having a seizure. then she said she had to look at my eeg after I waited one hour and paid my 40 dollar co pay I have gotten no where.

I am not going back to them I am so upset right now and shocked. has anyone had a horrible experience like this? I feel all they want is my money not to help me when this is disabling me.

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 5/23/2014 6:11 AM (GMT -7)   
I wrote this once before, but my browser decided to crash when I hit send. Ugh.

Having worked in Industrial Safety for several years, we had training in various things. One year, at a seminar, I took a session on industrial related diseases. Towards the end of the session, the physician giving the class talked generally about things.

He said if a patient presents with one symptom, they listen, two, they consider, and three or more they stop listening. I'm not suggesting they don't provide proper care, but when too many unrelated symptoms present, they rely on testing. If someone complains of the bottom of their left toe being number, and numbness near the right hip, and a patch in the middle of their forehead being numb, they probably aren't related. But if someone says half their body goes numb, or half their face, it makes more sense from anatomy.

I had an undiagnosed seizures for 15+ years. My symptoms worsened, but still the doctor refused to listen, he actually threw me out of his office, I went to another neurologist, he ordered a 24 hour monitor, and from the moment I had it on, it was showing characteristic spiking (Temporal Lobe Epilepsy). I was medicated and 15+ years of symptoms disappeared.

If you go to another doctor, try to avoid having your records transferred, the previous doctor may have voiced his opinion in them. If the new doctor wants the test results, he/she should be able to get them directly from the place that did the tests.

Hang in there, I've been through it before. What, exactly, causes your concern about seizures?
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