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Agent9er
Regular Member


Date Joined Feb 2014
Total Posts : 162
   Posted 6/17/2014 8:23 AM (GMT -7)   
Good morning,
I am new, 1st time poster to the epilepsy forum.  I usually post in Lyme Disease because both my daughter and I have Lyme.  I have a question and maybe some have answered it before. 
 
My daughter who is 5 is on Keppra for seizures and doing pretty well.  She has been on it for 3 years now but has a lot of mood swings and not sure if it is from Keppra or Lyme meds she is on.  Sometimes she seems zombieish with dark circles under her eyes and removed from life.  I hear about depression with Keppra and start to worry about her as time goes on.  Has anyone used Cannabis Oil With High Counts of CBD for seizures with good results? 
 
I was watching this video about kids on Cannabis Oil:
 
I have never been one to look for alternative healing until recently.  I just sometimes feel like the abx is doing more harm than good.
Just looking into other treatments for her.  I live in WA state so this would be easy for me to get. 
 
Thank you!
 
Jessica
Tick bite June 2008
Multiple Dr visits until I found a LLMD
Finally diagnosed December 2010
Tested positive for Lyme, Babesia and Bartonella January 2011
Treatment started January 2011

Daughter born with Lyme July 2009
Multiple health issues including seizures
Daughter tested positive for Lyme and Bartonella May 2011
Treatment started May 2011

Son born December 2011 tested negative

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 6/19/2014 1:23 PM (GMT -7)   
Hi, I started to write to you yesterday, but my response was too influenced by my opposition to legalization of marijuana. Realizing that I was not sufficiently informed, I withheld my post.

Without overly coloring my post with my views, I can tell you that the Epilepsy Foundation has a stated position on Cannabis in terms of being used to control seizures. (i.e. they advocate further research not limited by state borders).

www.epilepsy.com/article/2014/2/epilepsy-foundation-calls-increased-medical-marijuana-access-and-research

www.epilepsy.com/

Be advised that cannabis is not without side effects, some which can be substantial, and uniformity of therapeutic levels in the blood is often essential to prevent seizures. Medications produced by pharmaceutical companies have fairly rigid levels of compliance (tolerance from one batch to another) and are free of contaminants, substances obtained from non-pharmaceutical means may not have these assurances.

I'd consider contacting the Epilepsy Foundation for more information and be certain any actions taken are cleared with your doctor.

Also, when searching for more information, add NIH to the search line, it'll give you articles at the National Institutes of Health, and there were indeed articles supporting same.

Best of health to you and your family.

Agent9er
Regular Member


Date Joined Feb 2014
Total Posts : 162
   Posted 6/20/2014 7:30 AM (GMT -7)   
Thank you JungRulz. I appreciate your reply!

I had never thought of using Cannabis oil until I started seeing reports. Thank you for the links and I welcome any views. I am also against the legalization and never thought about going this route until I started reading about it. Living in WA state it is all over the news so I hear about it every day. I also have Lyme and after being treated for 4 years on antibiotics I have chosen to go a natural route with herbs and detox in the sauna daily. The abx took a toll on my body.

Keppra seems to be working for my daughter now. I am very new learning about epilepsy and am reading through the posts to become informed.

Thank you again!
Jessica
Tick bite June 2008
Multiple Dr visits until I found a LLMD
Finally diagnosed December 2010
Tested positive for Lyme, Babesia and Bartonella January 2011
Treatment started January 2011

Daughter born with Lyme July 2009
Multiple health issues including seizures
Daughter tested positive for Lyme and Bartonella May 2011
Treatment started May 2011

Son born December 2011 tested negative
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