First time tonic clonic seizures

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New Member

Date Joined Aug 2014
Total Posts : 1
   Posted 8/16/2014 4:46 PM (GMT -7)   
My 13 yrs old with no prior seizures history started having tonic clonic seizures last month. His CAT scan, oxygen levels, electrolytes are normal. His MRI was normal while sleep deprived EEG showed frequent burst of spike and high voltage slow wave discharge over left frontal region and neurologist diagnosed him with focal onset seizures.

He is on depakote right now.

What can trigger seizures out of blue? Should I do any other testing to find out what could have triggered it? Depakote is making him extremely sluggish and sleepy. Is there any other relatively safer drug that he can take?

Veteran Member

Date Joined Feb 2003
Total Posts : 668
   Posted 8/18/2014 10:40 AM (GMT -7)   

Most of the symptoms you've all described in this thread, I've had. Your son may have a form of sleep Apnea.
This could explain why all the tests are coming out normal during the day but show a spike in temporal lobe activity during sleep.

Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your night temporal lobe activity and how many seizures he may be having during the night that you (your son)may not know about, causing him to be in a "postictal" state.

If this is the case, it could be very beneficial to other health probs.

Re Having seizures or active seizure activity during your sleep: Could be due to lack of oxygen to the brain while you sleep from sleep aids such as certain anti-epileptic drugs, sleeping pills, severe snoring or some sort of restriction to the airway.

I have been dx'd with Chronic Obstructive Sleep Apnea.
After my sleep disorders test the Dr. showed me the EEG from that one night, I would stop breathing up to 50 times/hour and had 3 seizures and that I was waking up "post ictal" (moody and spaced out) tired,lethargic, (feel like crap)
I have purchased a CPAP machine (Constant Positive Air Pressure)as recommended by my Doctor, which provides constant air pressure and have noticed a vast improvement.
More energy when I wake up, better REM sleep, improved memory (less short term memory loss), and most of all ~ NO MORE NIGHT SEIZURES.

Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.
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