I have had this only happen twice but believe me, twice is plenty! It first happened when I was racing go cart type cars with my family, I started feeling weird, kind of lightheaded. After we were finished I felt so strange and was desperate to get my helmet off. My body began to " wrench" in a kind of way ( the closest thing way i can describe it is like when your vomitting, shoulders and back moving forward. I hurried and sat at the table and my arms and legs began to have massive uncontrollable twitches. ( Like as if they were bouncing all over, flailing. It was incredibly scary. We first thought my blood sugar was low but it wasn't. My neck also began to convulse. Then if that wasn't strange enough, I could feel my spine tighten up as to come from the bottom to the top as if in a wave- like pattern. This continued for quite a long time until th paramedics came. I was wide awake and left and could talk through the whole experience but kept licking my lips over and over. They tested for blood sugar and it was fine. I was able to answer all questions asked but couldn't stop these convulsion like movements. When laying on the floor my back would sometimes arch as if I was in horrible pain, but I wasn't.
This has happened twice to me and I am desperately trying to find ANYONE else that has had something similar to this happen.
I've tried to describe it to doctors and they can't figure it out. I've been to the ER twice and the first time they treated me horrible and accused me of being on drugs!!!! Until the blood test came back showing i had nothing in my system, they treated me like garbage. Thy told me it couldn't be seizures because I was alert and able to talk. I told them that it seemed to calm the muscle contractions when they put oxygen on. The doctor said i was wrong, even though the proof was there when they did. He said because my oxygen level was at 92 it couldn't be oxygen related.
The second time at the ER they were puzzled and asked me if I just wanted something for pain!!!!!!!!! NO, there isn't any pain and NO, I'm not a stinking addict that wants drugs. I just want to find out wht causes these.
I would love any information anyone can give to me!!!!!!
Thank you soooo much :)