Please help!!!!! Seizures or convulsions? I'm so confused!

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New Member

Date Joined Aug 2014
Total Posts : 1
   Posted 8/29/2014 7:28 PM (GMT -7)   
I have had this only happen twice but believe me, twice is plenty! It first happened when I was racing go cart type cars with my family, I started feeling weird, kind of lightheaded. After we were finished I felt so strange and was desperate to get my helmet off. My body began to " wrench" in a kind of way ( the closest thing way i can describe it is like when your vomitting, shoulders and back moving forward. I hurried and sat at the table and my arms and legs began to have massive uncontrollable twitches. ( Like as if they were bouncing all over, flailing. It was incredibly scary. We first thought my blood sugar was low but it wasn't. My neck also began to convulse. Then if that wasn't strange enough, I could feel my spine tighten up as to come from the bottom to the top as if in a wave- like pattern. This continued for quite a long time until th paramedics came. I was wide awake and left and could talk through the whole experience but kept licking my lips over and over. They tested for blood sugar and it was fine. I was able to answer all questions asked but couldn't stop these convulsion like movements. When laying on the floor my back would sometimes arch as if I was in horrible pain, but I wasn't.

This has happened twice to me and I am desperately trying to find ANYONE else that has had something similar to this happen.

I've tried to describe it to doctors and they can't figure it out. I've been to the ER twice and the first time they treated me horrible and accused me of being on drugs!!!! Until the blood test came back showing i had nothing in my system, they treated me like garbage. Thy told me it couldn't be seizures because I was alert and able to talk. I told them that it seemed to calm the muscle contractions when they put oxygen on. The doctor said i was wrong, even though the proof was there when they did. He said because my oxygen level was at 92 it couldn't be oxygen related.

The second time at the ER they were puzzled and asked me if I just wanted something for pain!!!!!!!!! NO, there isn't any pain and NO, I'm not a stinking addict that wants drugs. I just want to find out wht causes these.

I would love any information anyone can give to me!!!!!!

Thank you soooo much :)

Regular Member

Date Joined Feb 2014
Total Posts : 399
   Posted 8/31/2014 5:03 PM (GMT -7)   
I so feel for you, I too have been having strange spells after a severe concussion last year, my brain feels like it suddenly "shifts" and everything slows down, hard to explain, I sometimes get electricity in my arms and twitching in my fingers, it all lasts for just a few mins.

Went twice to the ER and had an episode right there, Dr treated me for migraines both times even though I did not have a headache, they thought maybe some kind of seizure.

I would advise seeing a neurologist, I am seeing one and am actually having an EEG next week.

There are folks on here who know all about seizures but I don't think just because you can talk, it's not one.

I don't usually talk when these spells happen but can if asked something.

It is so scary when it happens at first of course we go to the ER as there is definitely something going on but I think going to the neuro or other specialist is your next step.

Be careful though, I had one of these spells while walking down some steps a couple of weeks ago and fell and fractured my heel....omg it hurts!!

Hope you get answers and keep going until you find someone who's going to take this seriously.

Regular Member

Date Joined Jan 2014
Total Posts : 394
   Posted 8/31/2014 7:59 PM (GMT -7)   
I agree with thundercloud, see a neurologist. But be advised, I went undiagnosed with Temporal Lobe Seizures for 15+ years. When they worsened, I saw my neurologist, one of many I had seen over the years. He told me nothing was wrong with me. I went to yet another, he ordered a 24 Hour EEG, then i was diagnosed, medicated, and 15+ years of insane symptoms went away, almost overnight.

If these links work, one is to a women reporter suffering a migraine, the others are a man having seizures. See if anything on YouTube looks similar to what you have and read the comments.

Regular Member

Date Joined Feb 2014
Total Posts : 399
   Posted 9/1/2014 5:05 PM (GMT -7)   
Those are great video's, thank you JungRulz.

If I can say I have acted the same way as the lady having the migraine and somewhat like the man in the other video, am told I look like a deer in a headlight.

OP. are you okay?
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